 MS Webpals - people with MS who would like to make friends with other people with MS
Everyone with MS is welcome at Jooly's Joint - people of all races and all beliefs from every part of the world, including people who are gay, lesbian, bisexual and transgender, without exception and without judgement. MS doesn't discriminate - neither do we.
joolysjoint@hotmail.co.uk  
Name: Tim (#Jan38)
Gender: Male
Age: 58
Lives in: Gage County, Nebraska, USA
Years with MS: 23
After being diagnosed I continued to work for 13 years until the doctors told me it was time to retire (I guess that's the best word to use for 'not working'). I enjoy watching movies. Sci-fi and horror are my favorite. I also enjoy listening to musi, everything from classical to heavy metal. My favorite is rock from the 50s through to the 70s. I enjoy comparing symptoms with others and just talking about what's happened today.
Added 29 January 2012
joolysjoint@hotmail.co.uk
Name: Michelle (#Jan37)
Gender: Female
Age: 40
Lives in: Indiana, USA
Years with MS: 8
I am a single at home mom of two kids ages 16 and 18. I've had my share of ups and downs with MS, as many of us have. I just take one day at a time, sometimes hour by hour/minute by minute, but always try to keep a positive attitude. I've been on Rebif and am now on Copaxone. Have the best day possible!
Added 29 January 2012
joolysjoint@hotmail.co.uk
Name: Sylvia (#Jan36)
Gender: Female
Age: 37
Lives in: Spokane, Washington, USA
Years with MS: 13
I'm OK with MS, just hate the sidekicks!
Added 29 January 2012
joolysjoint@hotmail.co.uk
Name: Mary Jo (#Jan35)
Gender: Female
Age: 59
Lives in: Spokane, Washington, USA
Years with MS: 20+ (finally diagnosed 1992)
Hey everyone. I'm looking for a webpal who is lonesome like I am. I like to read, cook, exchange ideas, learn new things and I think I'll say I am looking for a kindred spirit. Hope to hear from as many as would like to write to me. I think I would be a good friend.
Added 29 January 2012
joolysjoint@hotmail.co.uk
Name: Carol (#Jan34)
Gender: Female
Age: 70
Lives in: California, USA
Years with MS: 53
I'm a retired school teacher. I'm still moblile and love to travel and meet people. I work at the MS Society in my area. I'd like to hear from others my age.
Added 29 January 2012
joolysjoint@hotmail.co.uk
Name: Rindy (#Jan33)
Gender: Female
Age: 48
Lives in: USA
Years with MS: 35
I'm have had MS so long that all my friends (I thought they were friends) have left me. I need a true friend that understands and I want to be there for them as I hope they do for me! Friends have to be earned and, just like me, I'm willing!
Added 29 January 2012
joolysjoint@hotmail.co.uk
Name: Barbi (#Jan32)
Gender: Female
Age: 46
Lives in: USA
Years with MS: 1
Hi! I was diagnosed in April 2011. I've been told I have lesions on my spine, neck and frontal lobe of the brain. I'm not on any MS meds and am trying alternative methods to see how I do. I was also told I have probably had MS for quite some time based on the MRIs.
Added 29 January 2012
joolysjoint@hotmail.co.uk 
Name: Gareth (#Jan31)
Gender: Male
Age: 47
Lives in: Northern Ireland, UK
Years with MS: 2
Hi all, I have primary progressive MS and I don't let it get me down (well, 90% of the time). So just keep on smiling and enjoy what you have today cause tomorrow it could be gone.
Added 2 January 2012
joolysjoint@hotmail.co.uk 
Name: Jocelyn (#Jan30)
Gender: Female
Age: 55
Lives in: Ontario, Canada
Years with MS: 30
Hi all. I was diagnosed with MS about 10 years ago although I am sure that I have had it since I was 25. I was told that my symptoms were "all in my head". I am feeling really alone and isolated with this disease and would really enjoy having some friends that know what I am feeling. I have a very positive attitude but it would be real nice to share experiences.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Brad (#Jan29)
Gender: Male
Age: 56
Lives in: Canada
Years with MS: Too many to count
I'm recently windowered and my life has been turned upside down with the sudden passing of my wife.
I have MS but I don't let it rule my life. Sometimes MS says otherwise. I've been kicked many times but I do try to remain optimistic and suppportive. I have a grand-daughter. I love to chat with MSrs about anything.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Heidi (#Jan28)
Gender: Female
Age: 38
Lives in: Vermont, USA
Years with MS: 11
I was diagnosed in 2000. Three years ago my relapsing remitting MS progressed. I currently lack mobility and cannot drive anymore. This disease sucks. I have a dark sort of MS humor... Murphy's Laws of MS.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Brian (#Jan27)
Gender: Male
Age: 49
Lives in: Iowa, USA
Years with MS: 5
I was diagnosed with MS early in 2007. I am now a single parent of two teenagers. I was further diagnosed with primary progressive MS this past summer. It has been affecting my right leg and right hand. Up until last year I played three rounds of golf a week and played catch with the kids, oh how I would love to do that again! I'm scared that I cannot attend my kids' sporting events!
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Karie (#Jan26)
Gender: Female
Age: 45
Lives in: Hobart, Indiana, USA
Years with MS: 26
Hello, I have secondary progressive MS. I had a nine-year break from MS until 2009. I learned how to drive and even went back to college online. But in 2009 my MS changed from relapsing remitting to secondary progressive. I now take Copaxone and Amprya and use a power chair and walker.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Karen (#Jan25)
Gender: Female
Age: 44
Lives in: California, USA
Years with MS: 14
Hi, I found out that I have MS Christmas 1997. I have been on several different medicines throughout the years. I still work a full-time job and am finding it getting harder and harder to do lately. I have two daughters ages 20 and 23 and two grand-daughters ages three and two. I'm now back on Copaxone for the third time. I was taking the Tysabri Infusion but was diagnosed with the JVC Virus and had to seek another treatment. I look forward to chatting with you.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Sunny (#Jan24)
Gender: Female
Age: 53
Lives in: Texas, USA
Years with MS: 8
I'm on SSI Disability. I have two sons, one is 22 and going to college and one is 27 and working in Afghanistan. I stay fatigued every day now. I don't go anywhere because I can't. I spend most of my time in bed. If I don't answer right away please don't be mad. I stay so tired I don't even get on the computer every day.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Barbara (Jan 23)
Gender: Female
Age: 38
Lives in: Cardiff, Wales, UK
Years with MS: Newly diagnosed
Hi! I'm a Scottish/Scandinavian woman living in Wales. I work in social care promotion and am studying for a second degree - though brain fog is getting in the way! Have a 12-year-old rugby-mad son. My main problems are fatigue, heat intolerance and constant tingling but I still trying to stay positive. I love cinema, reading, hanging out in cafe bars and chilling with my friends. I'd love to chat to anyone! It can be a lonely world with MS sometimes.
Added 2 January 2012
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Name: Peigi (Jan 22)
Gender: Female
Age: 62
Lives in: Scottish Highlands, UK
Years with MS: 12
Hello! I've was diagnosed in 1999 with primary progressive MS. I had a good idea it was MS symptoms but when it was confirmed it didn't go down too well. I had a lot of self pity for a long time. Then one day I thought 'I have MS, it doesn't have me'. So from that day I started to fight back as best I could. I'm so glad I did as I'm still mobile and I am so grateful for that. Laugh a lot, it's good for you. I'm interested in how other people with MS are coping.
Added 2 January 2012
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Name: Joyce (Jan 21)
Gender: Female
Age: 38
Lives in: Perthshire, Scotland, UK
Years with MS: 1
Hi, I have been diagnosed for a year and a half. I'm still in denial and not wanting to accept I have MS. In need of friendship with others that understand what we go through. Love to live life to the full (when I can now). Travel and theatre are my main priorities now - they used to be hill walking, aerobics, cycling (will continue to dream a cure will be found so I can return one day to these activities). Would love to chat with anyone to help overcome the diagnosis.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Nicola (Jan 20)
Gender: Female
Age: 36
Lives in: Perth, Scotland, UK
Years with MS: 8
Diagnosis was confirmed in June last year. Been unwell since 2004 which has been down to MS which I was led to believe was PVFS/CFS. I live with my partner and have a three-year-old son. I struggle with fatigue and have problems walking. I'd love to hear from anyone, especially people in my area.
Added 2 January 2012
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Name: Kim (Jan 19)
Gender: Female
Age: 33
Lives in: Lincolnshire, UK
Years with MS: 3
Hi, I was diagnosed with relapsing remitting MS three years ago. I have very few symptoms that I notice.
I am not on any medication as the way I think at present is 'if it ain't broke don't fix it'. I went to an MS meeting once but found that I didn't really fit. I work full-time and I have not had a relapse since I was diagnosed.
So, that's me... send me a message if it also sounds like you.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Crystal (Jan 18)
Gender: Female
Age: 28
Lives in: New York, USA
Years with MS: 2
Hello everyone, I've had MS for two years but was diagnosed only six months ago. I'd like to talk to anyone who understands what I'm going through. I am a student and I fear that MS will hinder me from accomplishing my academic goals. I have experienced the visual and balance symtoms and now I am having weakness in my legs and arms. I am currently on Gilenya and it seems like it has helped my vision problems. I'm an open-minded person who loves to laugh so feel free to contact me when you feel like chatting.
Added 2 January 2012
joolysjoint@hotmail.co.uk
Name: Alison (Jan 17)
Gender: Female
Age: 66
Lives in: Scotland, UK
Years with MS: 10
I'm a retired teacher of small children. I am a widow with two sons and one grand-daughter. I am secretary of our local MS Society branch and I enjoy that. My mobility is poor as my left leg is affected and you need two legs to walk well. I love life and having fun and a laugh.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Movenna (Jan 16)
Gender: Female
Age: 20
Lives in: Cornwall, UK
Years with MS: Newly diagnosed
I have recently been diagnosed and am really struggling to talk to people about it as I am afraid people will be scared off. It's made me really unsure about what my future holds now and would really like a person that i can talk to without worrying about their reaction.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Fiona (Jan 15)
Gender: Female
Age: 41
Lives in: Scotland, UK
Years with MS: 11
I am married and have two teenage sons. I was diagnosed with relapsing remitting MS in 2001, and continued to work in full-time employment with a firm of accountants until 2006 when I was having cognitive problems. I have now re-trained as a reflexologist and work part-time when I feel well enough (much easier to pace myself this way). I would love to hear from anyone who wishes to chat.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Emma (Jan 14)
Gender: Female
Age: 33
Lives in: Nottingham, England, UK
Years with MS: 2 months
I'm a secondary school teacher. I love my job and am really successful at it. This holiday I was diagnosed with MS and I have no idea how it will effect me, what I am supposed to do, etc. If you have any advice I would be happy.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Michele (Jan 13)
Gender: Female
Age: 45
Lives in: England, UK
Years with MS: 6
Just come on here to find people who can understand... or least try cos although I've got family and children, they dont.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Shadow (Jan 12)
Gender: Male
Age: 48
Lives in: UK
Years with MS: 21
Hello, I'm very open and will not judge anyone young or old. I'm married with two grown up sons, 18 and 23. It would be great to talk to others any time.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Iain (Jan 11)
Gender: Male
Age: 23
Lives in: Scotland, UK
Years with MS: 1 (possibly 4-5)
Hi folks. I've had MS for around a year. I would like to talk with people around my age - people who've just been diagnosed. I'm currently in my last year at University and just plodding through this dark cloud. Hope to chat to people soon.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Jim (Jan 10)
Gender: Male
Age: 52
Lives in: Falkirk, Scotland, UK
Years with MS: 22
Hi, I'm just a normal guy with MS. Still mobile and have plenty time to get to chat with people the same. I'd like to share comments with others with MS.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Cyn (Jan 9)
Gender: Female
Age: 26
Lives in: Rhode Island, USA
Years with MS: 15
I've been with Jooly's Joint for 10 years now and I'm more than happy to be friends with anyone. I'm 26 with a three-year-old with no parents and no help. Fun, fun, but still I manage, living with a positive open attitude. Any questions, please feel free to ask. There's pretty much not much I haven't gone through in my short life. I'm very greatful I've been relapsing remitting since I was diagnosed at 16 even though I've had symptoms since 11.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Rich (Jan 8)
Gender: Male
Age: 48
Lives in: Warwickshire, UK
Years with MS: 2
Hiya all. I was diagnosed 18 months ago but reckon I've had it for 10 years. I'm single and would love to make and meet with new friends. So let's chat!
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Terry (Jan 7)
Gender: Male
Age: 41
Lives in: UK
Years with MS: 4
I was told I wasn't in the typical category for MS; black, male, fit. I'm having problems with memory, eyesight, legs, sexual disfunction (whatever that is) and bladder at moment. All been a massive roller coaster. Be great to talk to anyone in a similar situation. Family life disintegrated - I'm too moody and insular - but trying to come out the other end and define my new life. If you'd like to talk be great to hear from you.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Mark (Jan 6)
Gender: Male
Age: 47
Lives in: Wales, UK
Years with MS: 14
I have had secondary progessive MS for 14 years and have experienced most of the things it throws at us. I now use a wheelchair and my sight has nearly gone in one eye. I no longer work due to my I'll health. I am looking for friendship.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Charles (Jan 5)
Gender: Male
Age: 54
Lives in: Sussex, UK
Years with MS: 15
I'm married with two grown-up kids. Started out with relapsing remitting now has become primary progressive. Have been in a wheelchair for five years - legs don't work at all. I work as a management and access consultant for 2 1/2 days a week on average. Fatigue and poor dexterity cause more problems than non-working legs. I enjoy having fun but don't laugh enough.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Christopher (Jan 4)
Gender: Male
Age: 56
Lives in: UK
Years with MS: 20+
I'm a medically retired teacher. I have a slipped disc courtesy of MS. My sight is poor and I use a talking book as reading from a book is painful. I use the computer daily. I like soft rock music and stimulating conversation. I use Paltalk and am an admin in MS & Friends which I enjoy.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Tara (Jan 3)
Gender: Female
Age: 26
Lives in: Birmingham, UK
Years with MS: 2
After graduating from uni, I found it difficult to find the grad job I was hoping for (and I hate the group task part!) but there was one email I kept getting - to work at Walt Disney World. I smiled my smiliest smile during the interview and got the 6-month placement in sunny Florida! I travelled round the USA with my husband afterwards and saw some weird and wonderful things. Contact me if you just want a chat! I have some amazing stories to share!
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Dale (Jan 2)
Gender: Male
Age: 28
Lives in: Toronto, Ontario, Canada
Years with MS: 8
Hey there! I've been living with MS now for 8 years and doing very good. If anyone wants to chat or hook up for a coffee in Toronto then don't hesitate to contact me. I'm very easy to talk to and will provide any help that I can. Keep your heads up and stay strong!
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Dave (Jan 1)
Gender: Male
Age: 44
Lives in: Manchester, UK
Years with MS: 11
I'm single and getting on with things the best I can. I was OK for the first 5 years but now have trouble with balance. I think I now have secondary progressive MS.
Added 1 January 2012
joolysjoint@hotmail.co.uk
Name: Sarah (Dec 2)
Gender: Female
Age: 37
Lives in: Northants, England, UK
Years with MS: 15
I was diagnosed as a student after having an attack of pins and needles around 15 years ago. I'm now classed as having 'benign MS' having only had one further incident (retrobulbar neuritis). I'm happily married with two daughters (three and three months). I'd love to hear from people in a smiliar boat, particuarly people with children as I can't help but worry whether I did the right thing having children. It was something I considered for a long time before having them, but I guess it's only natural to worry about their future.
Added 8 December 2011
joolysjoint@hotmail.co.uk
Name: Rani (Dec 1)
Gender: Female
Age: 38
Lives in: England, UK
Years with MS: 5
I'm married with two boys (twins). As you may imagine this is difficult at times living with our condition. I have massage therapy, physiotherapy and osteopathy to help with my physical ability. I would like to speak to people in similar circumstances.
Added 8 December 2011
joolysjoint@hotmail.co.uk
Name: Lee (Nov 1)
Gender: Male
Age: 25
Lives in: England, UK
Years with MS: 1
I have been diagnosed since July 2010. I just want to meet new people who understand what it's like to have MS and hopefully meet some good friends.
Added 28 November 2011
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