 Webpals who joined this month!
Email: May23@mswebpals.org
Name: Kim
Gender: Female
Age: 35
Lives in: Columbus, Ohio, USA
Years with MS: Just diagnosed
Hello everyone! I was diagnosed with MS in January. I went to see my doctor for
one thing and the next thing I knew I was getting MRIs and was told I had MS.
What a surprise for me. I'd been having some the symptoms for years but being
in the military they never really looked that deep into my complaints about how
I was feeling. I'm still in the Navy and have only three years left until
retirement. But now that I have a diagnoses of MS it's real tricky. I'm glad
that I've found Jooly's Joint where I can vent and meet others on the same
journey. I'm finding out that a lot of people just don't understand.
Added 4 May 2008
Email: May22@mswebpals.org
Name: TJ
Gender: Female
Age: 65
Lives in: Elliot Lake, Northern Ontario, Canada
Years with MS: 11
Hi, I was diagnosed in 1998 with chronic progressive MS. I walked OK then. I'm
now in a wheelchair. I'm awaiting a powerchair as my arms are no longer in use.
I'm married with grannykins and great grannykins. I love life and doing
whatever I can each day. I just had my third MRI. The results show blood in the
myelin sheaths where the nerves are damaged: 'no operation can be performed
ever'. Just remember my saying: 'May the sun always shine on your side of the
street!'. And please remember, don't worry. Rest, for God's awake!'. I'm
originally from Nova Scotia. I miss home but love my friends here, especially
the friends in Jooly's Joint. I just love people and family. Write me any time.
Added 4 May 2008
Email: May21@mswebpals.org
Name: Laurie
Gender: Female
Age: 49
Lives in: Hawaii, USA
Years with MS: 4
I'm married to a man from Israel. I'm actively involved in Jewish and Israeli
communities here. I have three kids, ages 25, 12, and 7. I retired from the US
Postal Service in 2006. Now I stay home and raise my kids and help my husband
with his vacation rental business. I'm writing my first novel, which is set in
Hawaii. I belong to the Sisters In Crime mystery writers' organization. I head
the neighborhood book club, teach the neighborhood water aerobics class, and
attend vegetarian cooking classes. I meditate with a group and alone. I have
recently gotten involved with The Intention Experiment, and the 100 Day Reality
Challenge. I love going to the beach, sailing, anything to do with the ocean!
I'd be happy to communicate with anyone about just about any subject!
Added 4 May 2008
Email: May20@mswebpals.org
Name: Matt
Gender: Male
Age: 43
Lives in: Marske, Cleveland, UK
Years with MS: 2, diagnosed 2007
Hi, I was diagnosed with with primary progresive MS in 2007. I first noticed
something was wrong when I was having difficulty walking and getting muscle
spasms in my legs. Any exercise caused my legs to stiffen. My hobbies used to
be skiing, kite surfing, kite boarding, wind surfing and motorcycling. These
hobbies are no longer possible. However, I'm now riding a three-wheeled scooter
which leans on corners and can be ridden whithout putting my feet down. I was a
welder down a potash mine, but now work in the lamp room as I no longer have
the stamina for the previous job.
Added 4 May 2008
Email: May19@mswebpals.org
Name: Simon
Gender: Male
Age: 49
Lives in: Somerset, UK
Years with MS: 8
I have PPMS. I can walk shortish distances. I enjoy food and wine. I accept my
illness but hope it can be cured without expecting a cure. I have some very
good friends that accept my limitations without making a big thing about them.
I don't take life very seriously. I'm open to communication from anyone
although my responses may appear strange (just because I am!).
Added 4 May 2008
Email: May18@mswebpals.org
Name: Pauline
Gender: Female
Age: 57
Lives in: Harlow, Essex, England, UK
Years with MS: Diagnosed 7 years
I've been diagnosed for seven years but have had problems for many more (my GP
said I needed a psychiatrist). I now can't walk at all so am constantly in a
wheelchair. I have a fantastic husband who does everything for me. I've been
married for 38 years, three children and seven grandchildren. I'm always on the
computer as I think it keeps my brain active. For a couple of years my husband
injected me with beta interferon and then Rebif but the consultant says it
would do no good for me now. I just hope that one day soon they find a cure for
this horrendous condition.
Added 4 May 2008
Email: May17@mswebpals.org
Name: Sharon
Gender: Female
Age: 47
Lives in: Staffordshire, UK
Years with MS: 7
I've had MS for quite a while and fought it everyday not to change me. But the
last few months have been hard going. I've been housebound for the first time
in my life, which leaves me feeling lonley, depressed and a nusiance. I'm
married have two kids and a grandaughter. I don't work any more. I don't do a
lot any more. I'd like to find the way back up this mountain. If you have any
clues drop me a line.
Added 4 May 2008
Email: May16@mswebpals.org
Name: Leanne
Gender: Female
Age: 23
Lives in: County Durham, UK
Years with MS: Diagnosed 2006
Hi, I'm a full-time mam to 28-month and 9-week-old boys. I was diagnosed in
2006 after my first son was born. I think I've had symptoms for years. I'm fine
at the minute apart from aches and pains. I'd love to talk to people who
understand what I'm talking about.
Added 4 May 2008
Email: May15@mswebpals.org
Name: Rof
Gender: Male
Age: 55
Lives in: Sussex, UK
Years with MS: 9
I've probably had MS for about 20 years, but was only diagnosed nine years ago.
For most of that time it had virtually no effect on me, apart from some lack of
balance. Then a couple of years ago my legs started to go. I believe I keep
positive. As a Christian, I thank God for that - I wonder how I'd cope if I
weren't. I do have down times, but they don't last long - I find something to
do which is a little treat - a good glass of wine, a good album on the stereo,
a good book, watch Dr Who, and so on. I'm not lonely, I just think it's nice
hearing what other people in a similar situation have to say.
Added 4 May 2008
Email: May14@mswebpals.org
Name: Harold
Gender: Male
Age: 56
Lives in: Guisborough, Cleveland, UK
Years with MS: 14
My MS started in 1995. All the normal things: walking like a drunk, water
works, double vision and more. I was told in 2001 'yes, you have MS'. In 2005 I
got a free upgrade to chronic progressive. I was also told by my neuro, 'You
are at the top of a ladder. You may stop half way or keep going down.' The wife
and I think I've passed the half way point. My hobbies are all gone thanks to
MS. I spend 24/7 in a chair, indoor or outdoors. I roll on the warm days when I
can sit outside with the wife and dog and a cup of tea. But hey-ho, it's only
MS, that's how I look at it.
Added 4 May 2008
Email: May13@mswebpals.org
Name: Gillian
Gender: Female
Age: 63
Lives in: North Wales, UK
Years with MS: 9
I recently retired from banking. I have two adult children and two
grandchildren. I use a scooter to go for walks with my Westie. I've been
happily divorced for 17 years and my glass is always half full. I'd love to
speak to anyone from anywhere about anything.
Added 4 May 2008
Email: May12@mswebpals.org
Name: Saintyrag
Gender: Male
Age: 47
Lives in: Northampton, UK
Years with MS: 3
I have relapsing remitting MS. Although diagnosed in 2005, like a lots of
others I've probably had this dreaded condition for many years (I estimate
13+). My main symptoms are fatigue, lack of feeling, pain and mobility
problems. I've recently started Copaxone and am hoping this will help. I have
MS but I won't let it have me.
Added 4 May 2008
Email: May11@mswebpals.org
Name: Linzi
Gender: Female
Age: 22
Lives in: Chesterfield, UK
Years with MS: 2
Hi, I'm just about getting used to my MS now and am helping with the
Chesterfield and District MS branch. I'm taking part in the Mitoxantrone trial
which is going well and I feel good! I'd love to chat to anyone in a similar
position!
Added 4 May 2008
Email: May10@mswebpals.org
Name: Michelle
Gender: Female
Age: 50
Lives in: Nebraska, USA
Years with MS: 40
I think that one of the first symptoms I had - and didn't know it - was my
inability to smell a skunk. I love animals but have always been allergic to pet
dander. I felt so bad when a step-uncle killed a skunk quite close to me when I
was about 10 years old. He was mystified when I couldn't smell the skunk. I've
never forgotten that. He was gasping and his eyes were streaming but I was
blank and just feeling sorry for the skunk. I was always a day dreamer and now
wonder if that was another symptom? ADD? Who knows! I've lived all over this
wonderful country, from Florida to Seattle. I've flown over the Rockies on
several occasions. Perhaps the altitude killed some brain cells? I like clean
dumb blonde jokes and they often fit now with the cognitive challenges of MS. I
enjoy chatting with fellow MSers.
Added 4 May 2008
Email: May9@mswebpals.org
Name: Mokey
Gender: Female
Age: 37
Lives in: British Columbia, Canada
Years with MS: 2+
I've been diagnosed for 2 years but it took a long road of 'there's nothing
wrong with you' to get to that point. I'm on Avonex. That's going well. I'm a
mom of three boys. I love nature, photography, and the quiet moments in life
(hard with three boys!). If anyone is interested in chatting about life with
MS, and life in general, I'd love to hear from you.
Added 4 May 2008
Email: May8@mswebpals.org
Name: Dizzy
Gender: Female
Age: 37
Lives in: Kent, UK
Years with MS: 3
Hi to all. I'm a mum of three: two boys and a girl. I have a parnter of nine
years. I'm still able to do everything I enjoy in life which makes me very
lucky. I have my bad days as well as the good but hey, that's life.Iif any one
wants to chat I'm here.
Added 4 May 2008
Email: May7@mswebpals.org
Name: Cathy
Gender: Female
Age: 32
Lives in: London, UK
Years with MS: 8
Hi everybody, I was diagnosed with MS in February after an MRI scan. I've now
had symptoms for eight years but thought they were due to stress or tiredness.
The list is quite long: dumbness, frequent falls, depression, bladder problems,
double vision, insomnia, swallowing difficulties, back pain, fatigue. I'm a
French teacher (I'm French) and I work four days a week. I get tired very
quickly but I love my job and it really helps facing life with MS. I'm getting
married soon and my partner is extremely supportive. I'm very lucky to have
him. I have some very good friends both here in the UK and in France, but I'd
like to meet friends with MS to talk about it and share experiences and
thoughts.
Added 4 May 2008
Email: May6@mswebpals.org
Name: Jennie
Gender: Female
Age: 47
Lives in: Derbyshire, England, UK
Years with MS: 18
Hi, I have progresive MS now. When I first got MS I had three small children. I
was a Comi Chef by trade - of course that had to stop. I sometimes have to use
a wheelchair. I like gardening, cross stitch and the grandchildren. Like hell
am I going to let MS take over my body. Sometimes it's been hard going,
sometimes it brings me to tears, but I'm determined to not let it bring me
down. I'm on Rebif. I'd love to hear from anyone.
Added 4 May 2008
Email: May5@mswebpals.org
Name: Ofelita
Gender: Female
Age: 47
Lives in: Tampa, Florida, USA
Years with MS: 19
I'm a wheelchair user but I feel OK.
Added 4 May 2008
Email: May4@mswebpals.org
Name: Mark
Gender: Male
Age: 33
Lives in: Newcastle, UK
Years with MS: 8
I'd like to speak to other people with MS to share thoughts, maybe make a few
friends and I suppose appreciate other people have issues too.
Added 4 May 2008
Email: May3@mswebpals.org
Name: Micko
Gender: Male
Age: 32
Lives in: Australia
Years with MS: 4
I used to be very active at heaps of sports and going to pubs and clubs but MS
has stopped me now. Damn. I have the primary progressive type. I can still
smile and laugh.
Added 4 May 2008
Email: May2@mswebpals.org
Name: Ina
Gender: Female
Age: 61
Lives in: West Midlands, England, UK
Years with MS: 25
I'm married with two grown up children and six grandchildren. I'm origianlly
from Manchester. I'm able to get around with the aid of my scooter. My main
symptoms are down the right side of my body, mainly in my hand. I like to spend
time at my mobile home in the country. I'm an animal lover. I have a miniature
sausage dog. I'd love to get in contact with anyone with MS.
Added 4 May 2008
Email: May1@mswebpals.org
Name: Anna
Gender: Female
Age: 41
Lives in: South Milwaukee, USA
Years with MS: 3
I love to fish watch The Packers, play pool and darts. I'm looking for friends
that have MS.
Added 4 May 2008
Webpals who joined one month ago!
Email: Mar25@mswebpals.org
Name: Becky
Gender: Female
Age: 55
Lives in: Waterville, Maine, USA
Years with MS: 12
I'm very bored and wish to make friends. I have three children - only the two
youngest really understand. It's been a long road and I can't figure out why I
can't get the strength to exercise or even clean house. I have to push myself.
Probably some depression on my part. I don't sleep well at all, maybe that
could be some of the reason. I don't know but am gonna talk to my neurologist.
I was on Copaxone but after a time it stopped working. I'm on Rebif now. I'd
like to chat or write to others.
Added 24 March 2008
Email: Mar24@mswebpals.org
Name: Arianna
Gender: Female
Age: 20
Lives in: Scotland/Italy
Years with MS: 2
Hi everyone, I'm studying in Scotland and I'm from Italy. It took one year to
achieve the diagnosis. I was sure it was something like brain cancer, so I was
quite relieved to know I wouldn't die straightaway! I'm on Copaxone and hope to
stay on it because there are no severe side-effects apart from post-injection
reactions. I have a good relationship with my MS. I think it makes me
appreciate life more and is a good excuse to take care of myself better. I
write poetry and lately I've written some good poems about MS... but thinking
about it alone is a bit too much. I'd really love to meet a friend with MS to
share problems, worries about MS, and other things too.
Added 24 March 2008
Email: Mar23@mswebpals.org
Name: James
Gender: Male
Age: 49
Lives in: Egham, UK
Years with MS: Too many
I first had symptoms 25 years ago. Things worsened, mainly pain and some
occasional disability. I then had major disability in my legs in 2007 and
suddenly I was in hospital with lesions on my spinal column. I thought I had
cancer or some dreaded disease. I was told I had MS. My new consultant says I
meet the criteria for the disease modifying drugs. I've been struggling for
years and thought I was going mad. Now it's all falling into place. To be
honest I still don't know what the implications are. I regret not have health
insurance and am fretting about the future. I'd like to speak to someone in the
same boat to retain my sanity.
Added 24 March 2008
Email: Mar22@mswebpals.org
Name: Gubbins
Gender: Female
Age: 49
Lives in: Canada
Years with MS: 7
Hello all you MonSters out there. I have relasping remitting MS and can now
relate to things that happened further back than the seven years. Life is what
we make it and my saying is 'don't let the b...... grind you down' or 'don't
sweat the small stuff'. I love to have a good laugh especially with a nice
glass of vino in my hand. So cheers or 'bottoms up' to you all. I've made some
great friends at Jooly's Joint over the years, long may it continue!
Added 24 March 2008
Email: Mar21@mswebpals.org
Name: Pete
Gender: Male
Age: 46
Lives in: London, UK
Years with MS: Diagnosed 2006
I have taken a completely complementary path in dealing with my MS. This
initially meant refusing steroids. This was a big step, and it seems to have
paid off. Nearly two years on I'm relapse-free and back at work. I'm an artist
and musician. I have practical experience of many spiritual paths including
Tibetan Dzogchen, Yoga, Yoga Nidra, Native American shamanism and Tantra. I'm
researching glyconutrients. I'd love to hear from open minded MS people who are
healing mind and body.
Added 24 March 2008
Email: Mar20@mswebpals.org
Name: VTHockeyMom
Gender: Female
Age: 35
Lives in: Vermont, USA
Years with MS: 13
Hello there! I was diagnosed when I was five months pregnant with my second
child at 23. Talk about a surprise! I've been on Copaxone for 10 years now and
have had only one really bad exacerbation since. I recovered fully except for
minor symptoms when I run a fever. It's very important for MS people to watch
their temperatures! It's the main cause for my symptoms to come back full
force. I'm married with a wonderful husband of 17 years. Our son is 15 this and
our daughter is 12. We love hockey, snowmobiling and motorcycling. I'm looking
for a few pals to chat with.
Added 24 March 2008
Email: Mar19@mswebpals.org
Name: Brian
Gender: Male
Age: 41
Lives in: Perth, Scotland, UK
Years with MS: 4
I have primary progressive MS. I hope to make friends from all round the world.
I'm a fun person with a very positive attitude. I run self-management courses
for anyone with a long term condition and they are great fun. I also do many
charity events to raise money for MS. I will be doing walks in Glasgow then
Edinburgh this summer. In August I hope to stay in a hoist bucket (1.1 m x 0.6
m) 17m in the air for 7 days. It should be fun!
Added 24 March 2008
Email: Mar18@mswebpals.org
Name: Jane
Gender: Female
Age: 39
Lives in: Scotland, UK
Years with MS: Just diagnosed
Hi all. I was diagnosed with relapsing remitting MS in January but have had
symtoms for years. I had just thought I was unfit! I've been told that I will
soon have to give myself regular betaferon injections (ouch). Any advice would
be much appreciated. I'd love to hear from people from anywhere in the world.
Added 24 March 2008
Email: Mar17@mswebpals.org
Name: TommyG
Gender: Male
Age: 50
Lives in: UK
Years with MS: 2
I'm in the process of medically retiring from nursing. I'm married with three
children. I'm taking part in the MS Society's MS Life 2008 conference next week
with my daughter as models on the catwalk.
Added 24 March 2008
Email: Mar16@mswebpals.org
Name: Ditzy
Gender: Female
Age: 52
Lives in: Suffolk, UK
Years with MS: Diagnosed 1995 but suspect I've had MS symptoms for 25 years
I'm a part-time administrator in a busy, varied job. It keeps me active and
using my brain. I just get on with life and make the necessary allowances for
major fatigue, memory challenges and deteriorating walking. Frustrating at
times! I'm married with two sons (25, 22) and a daughter (21). My interests
include work, family, reading and talking to anyone about anything and
everything. I'm upbeat and positive. Want to talk?
Added 24 March 2008
Email: Mar15@mswebpals.org
Name: Alison
Gender: Female
Age: 37
Lives in: Penicuik, Scotland, UK
Years with MS: Diagnosed March 2004
I have relapsing remitting MS. I'm on Avonex. I live with my partner and three
kids (16, 12, 8) and my zoo of animals. I work part-time and enjoy walking when
MS allows and being a mum to my kids.
Added 24 March 2008
Email: Mar14@mswebpals.org
Name: Nic
Gender: Male
Age: 24
Lives in: Leicstershire, UK
Years with MS: 7
Hi, I have relapsing remitting MS. No symptoms currently but I've had quite a
varied amount over the years, including loss of limb movment, sight, pins and
needles, all the usual but thankfully nothing that hasn't recovered. It would
be nice to make some freinds! I'm interested in the Fingolymod trials as I
can't bare needles and the IV treatment seems to do more harm than good!
Light-hearted banter a-plenty!
Added 24 March 2008
Email: Mar13@mswebpals.org
Name: Michelle
Gender: Female
Age: 28
Lives in: England, UK
Years with MS: 3
I was diagnosed with MS after having what I was told was Optic Neuritis. I've
suffered various relapses since, in my spine, neck and arm. I've been too
scared to use the injections for medication (silly I know, who would have
thought I'd be scared of anything after being told I have MS!). I got married
in June last year. It was a fantastic day and I have a great husband who is
very supportive and is my rock. I'd love to hear from anyone who would like to
chat!
Added 24 March 2008
Email: Mar12@mswebpals.org
Name: Faye
Gender: Female
Age: 48
Lives in: Georgia, USA
Years with MS: 12
I can still walk a little, but poorly.
Added 24 March 2008
Email: Mar11@mswebpals.org
Name: Sunny
Gender: Female
Age: 43
Lives in: Lancashire, UK
Years with MS: Knowingly for the past 3 years
I'd like to make friends with people who understand what it's like to live with
MS. I feel isolated and lonely at times. I see my friends less and less these
days. I've always been independent and find it difficult to ask for help. I'm
awaiting a lumbar puncture to determine what type MS I have (not my idea, but
it keeps the neuro happy). I live in a lovely country village with my son (11)
who is in recovery from ME and my dog and cat. I have a daughter (21) at
university and a son (23) who lives and works away. I like new age and
spiritual beliefs and philosophy. I love the countryside but am unable to walk
far and use my stick after about 10 minutes. I adore animals. I like
restaurants, pub lunches, musical theatre, pop concerts, gardening, films and
relaxing. I trained as an holistic therapist but haven't worked since hospital
admission three years ago. I'd love to hear from anyone who would like to chat,
have a moan or be inspirational.
Added 24 March 2008
Email: Mar10@mswebpals.org
Name: Wheels
Gender: Female
Age: 65+
Lives in: USA
Years with MS: 49
I'm a retired teacher, happily married with two grown children.
Added 24 March 2008
Email: Mar9@mswebpals.org
Name: Angela
Gender: Female
Age: 37
Lives in: Los Angeles, California, USA
Years with MS: 1
I have a son and a loving husband. We've been married almost 15 years.
Added 23 March 2008
Email: Mar8@mswebpals.org
Name: Lisa
Gender: Female
Age: 30
Lives in: Manchester, UK
Years with MS: Diagnosed 2008
I was just diagnosed but the doctors reckon I've had symptoms for life. I have
fatigue, leg pains and aches, back ache, spasms and falls occassionally. I have
family and friend support. I'm looking for new friends to support who will help
and support me.
Added 23 March 2008
Email: Mar7@mswebpals.org
Name: Mary
Gender: Female
Age: 21
Lives in: Athens, Greece
Years with MS: 3
Hello! I'm intrested in contacting other people that live with MS to share
experiences and opinions.
Added 23 March 2008
Email: Mar6@mswebpals.org
Name: Diane
Gender: Female
Age: 59
Lives in: New York, USA
Years with MS: 11
I'm a mother of three grown children. I have two grandchildren. I've been
separated from my husband for 15 years. I enjoy music, and conversation. I was
diagnosed with MS in 1997 after having hip replacements. My symptoms include
severe spasticity. I'd like to hear from others who are dealing with the same
problems. I have primary progressive MS.
Added 23 March 2008
Email: Mar5@mswebpals.org
Name: Anna
Gender: Female
Age: 40
Lives in: Milwaukee, Wisconsin, USA
Years with MS: 2
I have relapsing remitting MS. I'm on Copaxone with a lot more meds. I have
good days and bad days. I've been in a lot of pain for a while. It's been hard
to walk. Looking for friends that have the same.
Added 23 March 2008
Email: Mar4@mswebpals.org
Name: Dallel
Gender: Female
Age: 26
Lives in: Australia
Years with MS: 5
I was diagnosed with relapsing remitting MS. It's been difficult to adjust to.
I stay positive by hoping for a cure.
Added 23 March 2008
Email: Mar3@mswebpals.org
Name: Ron
Gender: Male
Age: 52
Lives in: Fremont, Nebraska, USA
Years with MS: 17
I'm divorced with chronic progressive MS. I was diagnosed in 1991. I use a
walker in the house and a wheelchair everywhere else. I'm hooked on the Jooly's
Joint chatroom and have made some great friends there. MS sucks but if you
learn to laugh at yourself it makes it easier.
Added 23 March 2008
Email: Mar2@mswebpals.org
Name: Jeff
Gender: Male
Age: 47
Lives in: Philadelphia, USA
Years with MS: 28
Greetings from Philadelphia. I'm a Housing Advocate. I walk with a cane and get
around pretty good. I'm looking for others with MS to swim, workout or hang out
with. My hobbies include music and going out to see live music as much as
possible. The house I have is wheelchair accessible. I'm single and I just
started exercising again but I'm no jock.
Added 23 March 2008
Email: Mar1@mswebpals.org
Name: Gemma
Gender: Female
Age: 20
Lives in:Dumfries, Scotland, UK
Years with MS: Diagnosed 2007
I have relapsing remitting MS. I was told last March that I might have it when
I had numbness in my legs. I'm going to start treatment soon. I'd be happy to
chat to anyone with MS.
Added 23 March 2008
Place your own MS webpal
advert!
Webpals who joined two months ago!
Email: Feb13@mswebpals.org
Name: Wabbit
Gender: Male
Age: 63
Lives in: Sittingbourne, Kent, UK
Years with MS: 20
I have primary progressive MS. No pain but my movement is impaired. I still
walk and drive. I'm retired but have written a book for newcomers encapsulating
20 years of slow learning about MS.
Added 11 February 2008
Email: Feb12@mswebpals.org
Name: Thea
Gender: Female
Age: 38
Lives in: Louis Trichardt , Limpopo, South Africa
Years with MS: 10
I was at last diagnosed in 2005 after a major stroke which left me paralysed
down my right side. I had to to learn to walk and write again. I don't work and
am medically disabled. I have problems with balance, memory loss, headaches,
vomitting, back pains and slurred speech. I concentrate on the things that I
can still do, like gardening (I have a small cactus collection), making
greeting cards and fridge magnets, knitting and fabric painting. I walk about
5.2km a day, cook, bake, clean, do the washing and help the kids with homework.
I'm so busy, there's not enough time in the day to do everything.
Added 11 February 2008
Email: Feb11@mswebpals.org
Name: Dolly
Gender: Female
Age: 41
Lives in: Slough, Berkshire, UK
Years with MS: 3
Hi, I have two kids, a 22-year-old son and a daughter of 15. My symptoms
include slight loss of balance (it mainly affects my left side) and my eyes (I
now wear glasses). I try to keep fit and like goin to the gym, swimming -
anything to stop me being bored! I like reading, going on the PC, going
shopping - all girly things I suppose!
Added 11 February 2008
Email: Feb10@mswebpals.org
Name: Emma
Gender: Female
Age: 26
Lives in: Gloucester, England, UK
Years with MS: Diagnosed 2 (first symptoms 7 years ago)
Hi all, it would be great to hear from anyone who wants to talk. I'm married
and a primary school teacher, although due to a relapse affecting my legs over
Christmas I'm only back at work part-time voluntarily. I enjoy swimming having
been a competitive swimmer before MS really attacked! I'm a big rugby and
football fan and enjoy watching all the soaps. I look forward to hearing from
anyone.
Added 10 February 2008
Email: Feb9@mswebpals.org
Name: Alessio
Gender: Male
Age: 48
Lives in: Montreal, Canada
Years with MS: 48
I'm of Italian origin, born in Canada. I've had secondary progressive MS since
1990. I'm doing OK with chemotherapy (cyclophosphamide). Most of the time I use
a wheelchair outside. In the house I use a walker. I'm married to a lady who
does NOT understand or let MS interfere with her life and she sends the
same message to my two girls who are aged 18 and 20!
Added 10 February 2008
Email: Feb8@mswebpals.org
Name: Northerngal
Gender: Female
Age: 40
Lives in: Newfoundland & Labrador, Canada
Years with MS: Diagnosed in 2005, symptoms for years before that
Hi there you fine people. I have relapsing remitting MS and have just begun
Tysabri infusions. My symptoms are fairly stable at the moment. I also have
fibromyalgia and fatigue is my biggest problem. I had to stop working last
April. I love reading and taking care of my two cats. Shopping is also a
passion when my fatigue is at bay. I also like to take leisurely walks. I'd
love to hear from anyone and everyone, especially those who've tried Copaxone
and/or Tysabri. I promise to make you laugh too.
Added 10 February 2008
Email: Feb7@mswebpals.org
Name: Animal Lover
Gender: Female
Age: 40
Lives in: West Midlands, UK
Years with MS: 3
Hello all. I was only diagnosed last year so it's still very new to me. I
didn't even know what MS was before I was diagnosed but I'm learning fast -
every day it teaches me something new so there's never a dull moment. I'd love
to hear from fellow MSers from around the world so why not drop me a line?
Added 10 February 2008
Email: Feb6@mswebpals.org
Name: Ed
Gender: Male
Age: 36
Lives in: Germany
Years with MS: 5
I was diagnosed with relapsing remitting MS in 2002. I'm in the US Army,
stationed in Germany. I've been in the Army for almost 17 years and it looks
like I'll be medically retired due to MS. I'm married and have a 4-year-old
daughter who keeps me very active.
Added 10 February 2008
Email: Feb5@mswebpals.org
Name: Jerry
Gender: Male
Age: 59
Lives in: Canada
Years with MS: 31
My wife and I met through Jooly's Joint and are incredibly happy in a
relationship where we don't have to explain things. We both have secondary
progressive MS and share everything, including care workers. We'd love to
connect with other MS couples to share stories and just relate. If you want to
know more, just ask!
Added 10 February 2008
Email: Feb4@mswebpals.org
Name: Lisa
Gender: Female
Age: 35
Lives in: Redcar, Cleveland, UK
Years with MS: 12
Hi all. I have relapsing remitting MS. I'm on Rebif. I inject three times a
week. I have a daughter and a fantastic boyfriend. I love reading, watching
films, going out to eat and a quiet drink. MS put a stop to my partying days
but I still know how to have a good time. I'd love to make some new pals, the
more the merrier. I can never have too many.
Added 10 February 2008
Email: Feb3@mswebpals.org
Name: Wendy
Age: 36
Lives in: Pukekohe, Auckland, New Zealand
Years with MS: 4
Hello. I have relapsing remitting MS. It would be great to chat and share
experiences about this unfair and unwelcome condition. I find keeping a sense
of humour helps me cope with the symptoms that MS throws at you. Drop me a
line, let's share, vent, laugh, cry about our MS and/or chat about anything
else in this world. Hope to hear from you soon.
Added 10 February 2008
Email: Feb2@mswebpals.org
Name: Jools
Gender: Female
Age: 40s
Lives in: Somerset, UK
Years with MS: Unsure how long I've had MS, but was diagnosed in about 2005 (my
memory's gone caput!)
I was diagnosed with a progressive type of MS. My main interests before coming
down with MS were walking, cycling and gardening. I used to walk for miles on
the hills. I also used to enjoy cliff walks, so MS has had a devastating effect
on me. Now I'm an avid reader and I'm interested in spirituality and New Age
subjects. I can still do a little bit of gardening, but not much due to
fatigue. I'd love to hear from anyone with similar interests, particularly in
the South West of England.
Added 10 February 2008
Email: Feb1@mswebpals.org
Name: Ann
Gender: Female
Age: 48
Lives in: Kansas, USA
Years with MS: 3
I have a rare form of MS. At first my lesions were only in my spine. This
causes my arms/legs to have no feeling yet I can still move them somewhat. I'm
always in pain. Only recently have they found lesions on my brain. So I'm
having cognitive problms too. I'd love to chat with someone who has spinal
lesions. I have five beautiful children. They keep me busy. I worked as a
computer analyst for 20+ years. I like to srapbook, read, quilt, and do 'kid'
stuff!
Added 10 February 2008
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