 New this month!
Jan2@mswebpals.org
 
Name: David
Gender: Male
Age: 42
Lives in: East Riding, UK
Years with MS: 9
I'm married with two teenage sons and a dog. I'm a prison officer and have
worked there for seven years - I love every minute of it. My employer is OK
with my illness. I'm going through a bad time coping with my MS. I have
relapsing remitting MS and am on Avonex. Things are slightly rough at the
moment with depression and I'm looking for people to chat, share experiences
and have a laugh with.
Added 16 January 2009
Email: Jan1@mswebpals.org
Name: Rachael
Gender: Female
Age: 36
Lives in: Norfolk, UK
Years with MS: 1
Hi, I've just been told I have MS .think it is the relapsing remitting form at
moment. I don't really understand any of it yet or want to. Time will show me.
I'm trying to stay happy but find it really hard at the moment. I have a patner
of 20 years who is great and four great kids. I look forward to hearing from
anyone.
Added 16 January 2009
New last month!
Email: Oct74@mswebpals.org
Name: Anne
Gender: Female
Age: 32
Lives in: Scottish Borders, Scotland, UK
Years with MS: 2
I'm quite a shy person. I love animals, especially my dogs. I'm still trying to
accept that I have MS and don't know anyone with it. I'd like to make friends,
so I can share my expierences and learn about others'.
Added 28 October 2009
Email: Oct73@mswebpals.org
Name: Tim
Gender: Male
Age: 30
Lives in: Wenzhou, China (but I'm Canadian)
Years with MS: 2
I've been living here in China for 4 years teaching English. I was diagnosed in
2007 (in China) after having strange vision trouble and bizarre feelings in my
body. I didn't fully understand what was happening to me until finally I was
told (in poor English) what the cause was. I returned to Canada for the summer
and found no help. I headed back home to China were I have lived ever since. I
have not taken any real medication and now walk with a crutch. It all happened
very fast and is terrifying. I'd love to find a good friend with primary
progressive MS with whom I could discuss living day to day.
Added 27 October 2009
Email: Oct72@mswebpals.org
Name: Chantal
Gender: Female
Age: 46
Lives in: Paris, France
Years with MS: 6
I was never ill before MS, time is changing. Now I've got subscriptions with
several hospitals in my nice city. I use a wheelchair outside and sometimes at
home when I'm tired. When I was working (I stopped three years ago) I was a
travel agent. I still like to speak English and travel, even though with MS
it's more complicated. I'm fan of music, literature and the arts, so it's
pleasant to live in a big city!
Added 27 October 2009
Email: Oct71@mswebpals.org
Name: Munner
Gender: Female
Age: 67
Lives in: Lansing, Michigan, USA
Years with MS: 2
I have four children, 12 grandchildren and eight great-grandkids. My wish is
that I could run and play like they do, or at least keep up with them. I have
relapsing remitting MS. I have no feeling in my lower body and my feet hurt
most of the time to the point that I cannot walk. But I keep telling myself
that there are people out there much worse off than I. Maybe some day I will
actully believe that. I love to sew and crochet. I'd like to have someone to
write to who understands what we are all going through.
Added 27 October 2009
Email: Oct70@mswebpals.org
Name: Tertle
Gender: Female
Age: 42
Lives in: Indiana, USA
Years with MS: 5
I have relapsing remitting MS, OA, RA, hypothyroidism, depression, lethargy and
asthma. I'm on multiple medications, some are just scary to take. I'm sick of
exacerbations and pain! I'd like someone to chat with to make us both feel
better about living with this unpredictable, terrible condition.
Added 27 October 2009
Email: Oct69@mswebpals.org
Name: Fergie
Gender: Female
Age: 47
Lives in: New Jersey, USA
Years with MS: 2
Hi, I'd like to be able to talk to another person with MS. My symptoms started
one morning when I tried to get out of bed and I couldn't tell which way was up
or down. I couldn't stand on my own, and went into a cold sweat and nausea. I
have a lot of questions about new symptoms, and would like to have a friend
with MS to learn more from.
Added 27 October 2009
Email: Oct68@mswebpals.org
Name: Tim
Gender: Male
Age: 42
Lives in: Sacramento, California, USA
Years with MS: 5+
One day, all of a sudden, I had a limp. It got worse and took over the entire
left side of my body. After six months, they told me it was MS. At first I
cried, now I don't. Our lives are not over, they are just different. Now I'm in
a powerchair. I'm still adjusting to not being part of the 'normal' 9-5 crowd,
not driving and other limitations. Jooly's Joint is great, it helps people feel
better. I need to find a way to fill my days.
Added 27 October 2009
Email: Oct67@mswebpals.org
Name: Stig
Gender: Male
Age: 45
Lives in: Norway
Years with MS: 9
I was a First Officer on a ship but after I got diagnosed with relapsing
remitting MS the game was over. I work today as a radio operator in the western
part of Norway. I was hoping to chat with people with MS who want to go through
stem cell treatment.
Added 27 October 2009
Email: Oct66@mswebpals.org
Name: Sam
Gender: Female
Age: 38
Lives in: USA
Years with MS: 4
Relatively new to this - diagnosed in January after being diagnosed with RA
first. I'm married with two dogs and three cats. I'm still struggling with how
to juggle MS and the emotions from it. I'm pretty far from my friends and
family and generally hate the State I live in, but we'll cope, somehow!
Added 27 October 2009
Email: Oct65@mswebpals.org
Name: GeneralSunZi
Gender: Male
Age: 54
Lives in: Brussels, Belgium
Years with MS: 12
I'm a computer scientist and an international civil servant. I'd like to get in
touch with other MSers everywhere, as 'normals' do not understand, and I'm
growing increasingly weary, when queried, of providing canned answers to
explain fatigue, that there is no therapy, that the evolution is unpredictable,
etc. I may not have the energy to exchange email twice a day, as I'm still
holding my full-time job, but surely once a week if affinity or common
interests are found. Good sense of humour at present, not always visible,
though.
Added 27 October 2009
Email: Oct64@mswebpals.org
Name: Lissylou
Gender: Female
Age: 42
Lives in: Lincoln, UK
Years with MS: 1
I was been diagnosed in July after a somewhat scary visit to hospital and lots
of tests. It's been an experience I wouldn't wish on anyone - shock, denial,
sadness and all the other feelings associated with finding out that there is
something you didnt expect. I'm now a lot more positive as I have realized I am
still me. I'm sure many people have been through the same and I'd love to chat
with you.
Added 27 October 2009
Email: Oct63@mswebpals.org
Name: Dedge
Gender: Male
Age: 55
Lives in: Nottingham, UK
Years with MS: 20
Hi, I have secondary progressive MS use a wheelchair and scooter to get around.
I live with my four boys (14 - 20), all still in education. I'm seperated from
my wife of 22 years. I'm about to retire due to poor health from my job of 38
years as a psychiatric nurse. My interests include pottery, archery and
sailing. I'm in the process of redefining myself - what next, where to expend
my energy. I'm looking into voluntary work. I'd like to hear from anyone for
chat, issues about raising kids alone, conversations, have a laugh, whatever.
Added 27 October 2009
Email: Oct62@mswebpals.org
Name: Jacqueline
Gender: Female
Age: 47
Lives in: Scotland, UK
Years with MS: 7
I live with my fiancee and our 10-year-old daughter in our detached cottage a
mile from the nearest town. My MS isn't too bad. I can still walk, sometimes
with the help of a walking stick or tri-walker. I find it easier to walk in the
house than outdoors. I don't drive any more and rely on my other half to drive
me where I need to go when he isn't at work. I miss seeing everyone I used to
when I could drive. Very occasionally, my friend I met when I was at art
college in the early 1980s comes to visit. Otherwise, I'm on my own and it's
often lonely.
Added 27 October 2009
Email: Oct61@mswebpals.org
Name: SilverFeet
Gender: Female
Age: 32
Lives in: Hertfordshire, UK
Years with MS: 3
Hi... The two things I really wanted to do in life were travel and help others,
especially overseas in developing countries. Both dreams were dented by MS. But
I still hatch plans to travel. I intend to do my trans-Siberian train ride one
day. I'm still learning to cope with this life-changing news. It would be great
to talk to other MSers and make friends along the way.
Added 27 October 2009
Email: Oct60@mswebpals.org
Name: Beth
Gender: Female
Age: 46
Lives in: Grove City, Pennsylvania, USA
Years with MS: 12
I'm no longer able to work as a medical transcriptionist because I can no
longer produce the amount of work required. I like to do crafting, cooking, and
have many other interests, including my family. I'd love to hear from someone
with the same interests, or others, to share experiences and lift each others'
spirits when needed. Please write, I would like to hear from you.
Added 27 October 2009
Email: Oct59@mswebpals.org
Name: Ray of sunshine
Gender: Male
Age: 44
Lives in: Cheltenham, UK
Years with MS: 12
Music has been my love, 80s and 90s in particular. Indie, but I like other
styles. In general I like songs with good vocals. Back in the '90s I studied
for a degree distance learning with Open University. I admit it was a slog but
a great achievement. My background is new product development (white goods),
however I've tried to move away from the label as an 'Engineer' and have spent
time studying arts and humanities.
Added 27 October 2009
Email: Oct58@mswebpals.org
Name: Angela
Gender: Female
Age: 52
Lives in: Neath, UK
Years with MS: 4
I'm looking to make contact with more people with MS who have experience of
taking LDN. I'm still working and living my life and giving MS the runaround!
I've been taking LDN for a year and would like to know about the experience of
others regarding symptom management, side effects, etc. I'm divorced with two
grown up children. I love films, theatre, languages, good wine and and trying
to learn how to grow old disgracefully!
Added 27 October 2009
Email: Oct57@mswebpals.org
Name: Rae
Gender: Female
Age: 32
Lives in: New Forest, near Southampton, UK
Years with MS: 14
Hi, I'm an optimistic kind of person who enjoys life and loves to try new
things. I have a lot of support from my family who live close by. I have
relapsing remitting MS. I had to give up work five years ago. I go to life
drawing classes and am hoping to have a career as an artist. I'd really like to
make some new friends. I look forward to hearing from you.
Added 27 October 2009
Email: Oct56@mswebpals.org
Name: Jo
Gender: Female
Age: 38
Lives in: Manchester, UK
Years with MS: Not too sure, diagnosed 2008
I'm mum to two boys aged five and eight. I've been a widow since January 2007.
My symptoms after husband's death were put down to grief and I was made to feel
like a hypochondriac. I have relapsing remitting MS and have trouble with my
legs and terrible headaches. Fatigue is a nightmare and with two young boys to
look after on my own and is probably the hardest part to deal with. I'm trying
my best to keep upbeat and have agreed to start Copaxone.
Added 27 October 2009
Email: Oct55@mswebpals.org
Name: Rachel
Gender: Female
Age: 36
Lives in: Wakefield, UK
Years with MS: Diagnosed 2 years - possibly had MS for 5 years previous to
that
I have relapsing remitting MS. I'm on Tysabri and I won't let the MonSter get
me down. I have pains in my head, my feet are constantly numb and I'm so dizzy
- nothing to do with being blonde! I fall over lots - but I bounce back.
Fatigue is the real killer! I have an amazing little dog who helps me through
the bad times. I enjoy drawing, painting and art, going to the cinema and
believe it or not I'm trying to learn to horse ride! I try to write poetry and
I read a fair bit. I still try to work full time - and I'm lucky to have an
understanding employer.
Added 27 October 2009
Email: Oct54@mswebpals.org
Name: Sarah
Gender: Female
Age: 52
Lives in: London, UK
Years with MS:1
I've been living with a form of muscular dystrophy for 20 years and as a free
'added extra' have recently been diagnosed with MS. How's that for a BOGOF (buy
one get one free!). I'm not looking for sympathy, just a little understanding
that life's sh*t sometimes. On the plus side I have a great husband, two sons
(who just think I'm being lazy) and loads of support from my friends. As long
as I can still play bridge things are good! Please get in touch if we can
support each other with a good moan sometimes.
Added 27 October 2009
Email: Oct53@mswebpals.org
Name: Mark
Gender: Male
Age: 51
Lives in: Moreton-in-Marsh, Gloucestershire, UK
Years with MS: 30
I acquired MS while a soldier in Germany. Subsequently I managed 22 years as a
policeman in the Cotswolds. I left the police in 2001 and became manager of a
nearby Voluntary Help Centre. I'm a published author. I'm divorced with two
wonderful grown-up sons. I' mobility impaired, but still drive. I go to loads
of plays, rock concerts, etc. Life is wonderful.
Added 27 October 2009
Email: Oct52@mswebpals.org
Name: Barry
Gender: Male
Age: 68
Lives in: UK
Years with MS: 31
I was dignosed in 1990 although I had symptoms in 1978. It consisted of
numbness and pin and needles in my left hand. I was walking quite normaly until
1985 when the same feeling started in my feet and legs. They did a lumber
puncture, a mileogram and various other tests but I didn't get an answer to my
problems until they performed an MRI scan. I can still walk a little using a
walking frame but if we go out I need to be in a wheelchair or on an electric
scooter. My main problems are lack of mobility (walking) and bladder problems.
Added 27 October 2009
Email: Oct51@mswebpals.org
Name: Mary Ann
Gender: Female
Age: 30
Lives in: North Carolina, USA
Years with MS: 12
Hi! I was diagnosed when I was 17. The last 12 years have been scary, wonderful
and confusing, but God has brought me through it all! I am a full-time mommy to
an extremely active five month old boy and part-time financial administrator.
My husband and I are also very active in our church. I have relapsing remitting
MS and haven't had a flare up in three years. Although I do have limitations, I
strive to focus on what I can do, not on what I cannot.
Added 27 October 2009
Email: Oct50@mswebpals.org
Name: Liz
Gender: Female
Age: 59
Lives in: Hunmanby, North Yorkshire, UK
Years with MS: 25
Up until two years ago I was in a wheelchair diagnosed with primary progressive
MS. By some miracle I can now walk around and drive. I still take Baclofen and
occasionaly Diazapan. I tire very easily but with a stick I can walk quite a
long way as long as I keep stopping for a rest. For the moment I'm living a
fairly normal life. I don't expect it to last forever but am making hay while
the sun shines. I love to make friends and am a happy person.
Added 27 October 2009
Email: Oct49@mswebpals.org
Name: Rodney
Gender: Male
Age: 41
Lives in: England, UK
Years with MS: Diagnosed 2008
I have had MS probably around seven years. I was a plasterer and played golf
relentlessly. My symptoms were making both my job and my hobby impossibly hard,
and as the years went on I could do neither. I have a five-year-old daughter
but don't live with my wife or daughter now because of the MS and my not
accepting it. I speak to my daughter most days and see her when I can as they
live in a different part of the country to me.
Added 27 October 2009
Email: Oct48@mswebpals.org
Name: only1alana
Gender: Female
Age: 24
Lives in: Scotland, UK
Years with MS: Under investigation
For the last few years I've had problems which started in my hands where I had
no grip. Other things included muscle weakness, tiredness, waking up with
numbness/pins and needles in my arm and constantly bumping in to things. Two
years ago, doctors diagnosed fibromyalgia. Between May and August this year I
was symptom free, then it all started again. Over the last week or so while
waiting on full blood results MS started jumping out at me as many symptoms
match. I asked the doctor today to refer me for testing mainly for piece of
mind. I guess I just don't know what is wrong and want some answers.
Added 27 October 2009
Email: Oct47@mswebpals.org
Name: Shadow
Gender: Female
Age: 41
Lives in: Mansfield, UK
Years with MS: 3.
I was working up until just over a year ago. Even though I can't do everything
I used to do I do as much as I can. I have a daughter and a grandaughter and
they keep me going. Live life to the full or as much as you can.
Added 27 October 2009
Email: Oct46@mswebpals.org
Name: lajo
Gender: Female
Age: 26
Lives in: longford, Ireland
Years with MS: 6
I got sick in 2003, not diagnosed until 2007. I have headaches, fatigue, and
paralysis down one side. I'm on Rebif and doing well, but had an episode of
optic neuritis in April. I have a year-old daughter.
Added 27 October 2009
Email: Oct45@mswebpals.org
Name: Mog
Gender: Female
Age: 43
Lives in: Livingston, West Lothian, Scotland, UK
Years with MS: 4
I have primary progressive MS and use a wheelchair now. I can still stand
holding onto something and can walk a little. I enjoy music and films but
unfortunately can't be active anymore. I really miss the gym.
Added 27 October 2009
Email: Oct44@mswebpals.org
Name: Bobbi
Gender: Female
Age: 37
Lives in: Michigan, USA
Years with MS: 3
Outgoing and sarcastic, I like sports and spending time with friends. I'm
looking for other friends who understand how it is to deal with this
everyday.
Added 27 October 2009
Email: Oct43@mswebpals.org
Name: Hutchy
Gender: Male
Age: 55
Lives in: Scunthorpe, UK
Years with MS: 16
I'm very well at moment, use a stick to get around. I have two sons aged 23 and
16. I love music (big Bruce Springsteen fan), action movies, reading, meeting
up for coffee and going to the pub.
Added 27 October 2009
Email: Oct42@mswebpals.org
Name: Shadow
Gender: Male
Age: 46
Lives in: England, UK
Years with MS: 20
Hello, like many I have a wheelchair stuck to my ass now. I was so strong and
pretty fit with no worries health-wise for all my previous life before MS. I
have secondary progressive MS (like that makes a difference, it's only a label
at the end of the day). MS makes a big difference to anybody's life. I go the
message boards and live chat on Jooly's Joint if you wanna a talk there - I
don't do much else these days.
Added 27 October 2009
Email: Oct41@mswebpals.org
Name: Tammy
Gender: Female
Age: 34
Lives in: Halifax, Nova Scotia, Canada
Years with MS: 15+
Meeting more and more people on the internet with MS is such a wonderful idea.
Added 27 October 2009
Email: Oct40@mswebpals.org
Name: Cynthia
Gender: Female
Age: 70
Lives in: Northampton, England, UK
Years with MS: 6
Hi, I was diagnosed in 2003 and have aggressive progressive MS. I was very
active until 2003 so it has come as a shock. I do cross stitch to try to keep
my hands active. I have three children aged 50, 48 and 43.
Added 4 October 2009
Email: Oct39@mswebpals.org
Name: Jimbo
Gender: Male
Age: 67
Lives in: Sidcup, Kent, UK
Years with MS: 1 officially, but maybe 10
I was diagnosed as primary progressive (late onset) and given Tizanidine 2mg
tabs which make me drowsy, so if I intend driving later, I boycott them. I'm a
member of the MS Society local branch, meeting weekly for gentle stretch
exercises. I'm a retired electronics technician, married with two grown-up
daughters. I enjoy current affairs, DIY and emailing.
Added 4 October 2009
Email: Oct38@mswebpals.org
Name: Mary
Gender: Female
Age: 41
Lives in: Motherwell, Scotland, UK
Years with MS: Diagnosed 2009, symptoms since 2005
Hi, I'm married with three high school age kids. I work in a care home as a
domestic. I have great support from my husband but the kids don't say much. I
think as my symptoms are not visible (numb hands, feet and legs, fatigue) they
don't think I have much to deal with. I'd like to chat to other MSers. I'm a
very postive person and live for today.
Added 4 October 2009
Email: Oct37@mswebpals.org
Name: Lisa
Gender: Female
Age: 42
Lives in: Market Rasen, Lincolnshire, UK
Years with MS: Just diagnosed
I have just spent three weeks in hospital with severe vertigo and dizziness. I
was diagnosed with MS after various tests. It has now been confirmed. I'm
currently off work recovering but have taken the giant step of telling my
employers. It appears in hindsight I've had various symptoms in the past like
sinusitis, visual disturbances and many colds and tiredness not knowing what
was wrong or even noticing they could be linked. However, I now know and am
trying to stay positive as I face the path ahead. I have always been an active
type of person, loving rambling and being outside.
Added 4 October 2009
Email: Oct36@mswebpals.org
Name: Julie
Gender: Female
Age: 36
Lives in: Bingley, West Yorkshire, UK
Years with MS: 2
Hello to all reading this. I have been diagnosed with relapsing remitting MS
although I've had Degenerative Disc Disease for more than 7 years. With the
pain and isolation that comes with all this, I'd love contact with people going
through this. I live with my Canadian partner and my Persian cats Merlin and
Lucky, who by the way are lovely and affectionate. I enjoy music, travel and
sunshine and my computer. I'm looking to make contact with others, to meet
people in a similar situations, to email and to share thoughts and information.
Added 4 October 2009
Email: Oct35@mswebpals.org
Name: Jane
Gender: Female
Age: 46
Lives in: West Midlands, UK
Years with MS: 15
I use a wheelchair most of the time. However, this doesn't stop me from living
life to the full and I work in education. I'm an animal lover and have five
cats and two dogs. My hobbies include travelling, reading, writing and
generally meeting new people and visiting new places. I don't have any children
and am single. I'm looking for webpals from anywhere in the world including
close to home!
Added 4 October 2009
Email: Oct34@mswebpals.org
Name: David
Gender: Male
Age: 56
Lives in: Stubbington, Hampshire, UK
Years with MS: 9
My interests included squash, badminton and travel but sadly no longer. My
symptoms include spasticity. I can manage a short distance with a stick but
otherwise use a scooter for outdoors and have purchased a small powered
wheelchair. I have stayed in good humour but it's tough at times.
Added 4 October 2009
Email: Oct33@mswebpals.org
Name: Roger
Gender: Male
Age: 55
Lives in: Norfolk, England, UK
Years with MS: Probably 35, diagnosed 3
I have secondary progressive MS so am slowly going downhill (my friends have
been telling me this for years!). My symptoms are mainly fatigue, vertigo and
poor balance and I'm unable to walk far. I use a stick for short distances, a
scooter for middle distances and a car for further. I used to be quite active,
walking, sailing, cycling, etc. but even the thought of them is exhausting now!
I'm treasurer of LAMS a day group run by people with MS for people with MS
(with some volunteer help). Meeting others with MS is the best medicine we have
- especially if you are newly diagnosed.
Added 4 October 2009
Email: Oct32@mswebpals.org
Name: Erica
Gender: Female
Age: 27
Lives in: North Carolina, USA
Years with MS: 1
I had numbess and tingling in my extremities and abdomen and for three days I
couldn't move my leg. I then vision issues in my right eye. I demanded an MRI
so my doctor ordered it. They tried to say it was my Hashamotas. I was tired
and knew something was wrong. Googling suggested MS so I wanted to know. I
enjoy spending time with my kids. I'm a recently divorced single mom. I'm
looking to meet people who know what's its like and to share with.
Added 4 October 2009
Email: Oct31@mswebpals.org
Name: Lesley
Gender: Female
Age: 50
Lives in: Hampshire, UK
Years with MS: 24
I'm a happily married mum of two slowly, very slowly, adapting to life with MS.
It's almost brought me to a grinding halt only for me to come out fighting -
I've pulled myself out of my wheelchair and onto a wheeler. I'll never give in
without a fight! Keep smiling, it's not all bad.
Added 4 October 2009
Email: Oct30@mswebpals.org
Name: Gwen
Gender: Female
Age: 52
Lives in: Brighton, UK
Years with MS: 2
I was diagnosed with relapsing remitting MS in 2007 after numbness and tingling
in my right side. I now do injections called Rebif. They seem helpful, but my
daily routine has been so disrupted, and that I hate. I may have MS, but it's
not having me. I want to chat to others with MS cos others without MS don't
understand.
Added 4 October 2009
Email: Oct29@mswebpals.org
Name: Julie
Gender: Female
Age: 47
Lives in: Edinburgh, UK
Years with MS: 12
My MS is mild relapsing remitting and I'm physically active but have difficulty
keeping up with friends who are MS-free. My first MS symptom was optical
neuritis 12 years ago which came as a terrifying shock especially because I
come from a family of visual artists and was a successful children's book
illustrator. Since then I've had another bout of blindness in the other eye due
to optical neuritis and problems with blurred vision and a period of double
vision. I'm single and enjoy going to the cinema, keeping fit through gym
visits and yoga, cooking and seeing friends when I can. Unfortunately MS has
had a very negative effect on me with regards to my self confidence and I've
become increasingly depressed and isolated - not good.
Added 4 October 2009
Email: Oct28@mswebpals.org
Name: Ammar
Gender: Male
Age: 41
Lives in: Saudi Arabia
Years with MS: 10
I started feeling numb in 1998, and later I was unable to walk for long
distances with balance problems. Eventually in 2006, I was diagnoised with MS.
Since then I took Rebif 44 up to 2008 when I started Avonex. I'm still able to
work but am having great dificulties balancing to walk, even for short
distances and fatigue.
Added 4 October 2009
Email: Oct27@mswebpals.org
Name: Karen
Gender: Female
Age: 54
Lives in: Conneaut, Ohio, USA
Years with MS: 15
I have chronic progressive MS and worked until 2000 until the fatigue,
restricted mobility and tremors finally got the best of me and I had to go on
SS Disability. Isn't it just amazing that you can spend all of your time at
work wishing that you were at home because of all the things that you could be
doing - I'm sure I'm not the only one now stuck at home and not able to do any
of this stuff that I wanted to! I'd love to exchange ideas, gripes, and
anything else.
Added 4 October 2009
Email: Oct26@mswebpals.org
Name: Paul
Gender: Male
Age: 49
Lives in: Gateshead, UK
Years with MS: 30
Hi, I've had MS for a long time now. It started at 17 and was very aggressive
though it seems to have settled down these past 10 years. I've been very lucky
really and devote a lot of my time to my MS peers. I love music and write lots
of poetry which helped me out of a long depressive stage! I'd really love to
email chat for life must go on whatever.
Added 4 October 2009
Email: Oct25@mswebpals.org
Name: Madeleine
Gender: Female
Age: 52
Lives in: Huntingdon, UK
Years with MS: 12
I'm well travelled. I've done courses in counselling skills, art and design,
reiki and computing. I take Baclofen and Pregabalin but otherwise I'm into
alternative therapies. I take valerian, skullcap and yarrow. I also use
capsaicin or chilli muscle rub for my legs. It's fantastic for the burning
sensation of nerve pain. I watch my diet, avoid wheat and dairy and drink three
litres of fluid daily. I had kinesiology for two years which helped enormously.
I have twice weekly massage on my legs, hopi candles and I meditate. Feel free
to contact me.
Added 4 October 2009
Email: Oct24@mswebpals.org
Name: Diana
Gender: Female
Age: 53
Lives in: Canada
Years with MS: 15
I was diagnosed in 1994 and started on Rebif immediately. It has just been in
the recent years that I'm starting to have mobility issues. I don't like going
to support groups and would like to meet people from all over the world who can
relate to the issues MS presents. I tend to seclude myself and not go out so
would like to use this opportunity to meet as many new friends as I can.
Added 4 October 2009
Email: Oct23@mswebpals.org
Name: Marscha
Gender: Female
Age: 33
Lives in: Rotterdam, Netherlands
Years with MS: 8
I was diagnosed in 2001. I have very few physical symptoms apart from fatigue,
but am now starting to wonder if the mental problems I have are also a symptom
of MS. Because I've had very few physical symptoms I've been able to more of
less deny it these past eight years which may have done my situation a lot of
damage due to physical overload. I'm now starting to face the music and find it
scary and confusing. Maybe we can help each other.
Added 4 October 2009
Email: Oct22@mswebpals.org
Name: Bella'smum
Gender: Female
Age: 59
Lives in: Hamilton, Ontario, Canada
Years with MS: 25
I was fairly symptom-free until April 2008 when I suffered an attack of optic
neuritis that has left me with virtually no sight in my right eye. Since then
I've had trouble with balance, headaches and depth perception. My neurologist
has encouraged me to start self injection therapy and I hope to start Rebif
soon. I'd love to hear from others that are in similar situations.
Added 4 October 2009
Email: Oct21@mswebpals.org
Name: Tiny
Gender: Female
Age: 39
Lives in: Yorkshire, UK
Years with MS: 9
I have relapsing remitting MS, diagnosed seven years ago. I'd like to hear from
anyone who loves to chat about anything and everything. I try and keep busy as
much as MS allows. I retired from work because of fatigue and lack of
concentration. I try to be upbeat, smiley and postive as much as possible. I
look forward to hearing from you all.
Added 4 October 2009
Email: Oct20@mswebpals.org
Name: Karie
Gender: Female
Age: 43
Lives in: La Porte, Indiana, USA
Years with MS: 24
I returned to college for my teaching degree in Special Ed. I just started a
online degree. I'm a Christian and want to be a friend to all. I have MS but
MS, does not have me. I remain positiv by sharing motivational help and
support. Never stop! Believe in the impossible and reach for the stars. Dive
into your imagination, and be what ever you want.
Added 4 October 2009
Email: Oct19@mswebpals.org
Name: Rob
Gender: Male
Age: 54
Lives in: Wales, UK
Years with MS: 13
I'm married with a grown up daughter and have recently welcomed a new puppy to
the house - lots of fun! The only treatment I've found beneficial is the
regular HBO sessions I attend. These days I keep myself busy on the computer
and would be pleased to hear from anybody who wants to chat.
Added 4 October 2009
Email: Oct18@mswebpals.org
Name: Coll
Gender: Female
Age: 42
Lives in: Canada
Years with MS: 4
I like talking to people anywhere in the world and MS has a specific interest
to me. My father also lives with the illness. So drop me a line if you like, I
enjoy news from anyone! Cheers!
Added 4 October 2009
Email: Oct17@mswebpals.org
Name: Jan
Gender: Female
Age: 48
Lives in: Peterborough, UK
Years with MS: It's been secondary progressive for 7 years
I live with my 16-year-old son. I love going swimming in the summer and spend a
lot of time on the computer. I still try and have a giggle about life, as I've
always been one to try and live it to the full but it isn't always easy with
MS! Looking to make new friends - anyone out there?
Added 4 October 2009
Email: Oct16@mswebpals.org
Name: Janette
Gender: Female
Age: 39
Lives in: Yorkshire, UK
Years with MS: 9
Hi, I have relapsing remitting MS, diganosed in 2002. I'd love to hear from
anyone that likes to chat about anything at all, including MS and how it
affects you. I'm single with no children, so have lots of spare time to write
and reply. I look forward to hearing from you soon.
Added 4 October 2009
Email: Oct15@mswebpals.org
Name: Pete
Gender: Male
Lives in: Portjefferson, Long Island, New York, USA
Years with MS: 30
It started out as trouble walking in 1976. I was diagnosed in 1982. I have
slowly lost the use of my legs and arms. I worked until 1994. I was married for
41 years but lost my wife to cancer in 2006. I'm a quiet guy living with my
daughter her husband and grandson. I'm now in bed 24/7 where I watch TV and
read books. I also listen to oldies music.
Added 4 October 2009
Email: Oct14@mswebpals.org
Name: Judy
Gender: Female
Age: 48
Lives in: Massachusetts, USA
Years with MS: 5
Looking to communicate with someone to share MS stories, give/receive
guidance/advice, and just for fun. My life is in transition as I'm recently an
empty-nester and hubby works nights while I work days. I'm bored! Let's be
friends. Let's communicate.
Added 4 October 2009
Email: Oct13@mswebpals.org
Name: Alana
Gender: Female
Age: 42
Lives in: Scotland, UK
Years with MS: 19
I've been married for 15 years although we've been together 20 years this year.
We have no children so it's just the two of us. My symptons are mainly vertigo
which can be really severe at times and can make my arms and legs go numb. I
love going out, making new friends, shopping, holidaying abroad and generally
enjoying life when I can.
Added 4 October 2009
Email: Oct12@mswebpals.org
Name: Ilisa
Gender: Female
Age: 51
Lives in: Miami, Florida, USA
Years with MS: 9
I've been a professional flamenco dancer, teacher and choreographer for thirty
years. I founded two non-profit arts organizations which I'm still trying to
keep going, though my MS symptoms are an obstacle. My symptoms are mainly pain,
numbness and tingling in my feet and legs, which often spreads to the rest of
my body. I have some other symptoms that come and go as well. My symptoms
became so severe that I was homebound for two years, but have now improved
significantly since I began treatment with Tysabri 11 months ago. I love
literature, theater and music, and have recently begun writing a memoir. I'm
married and have two teenage children.
Added 4 October 2009
Email: Oct11@mswebpals.org
Name: Christopher
Gender: Male
Age: 54
Lives in: Leeds, England, UK
Years with MS: 14
Hi, I have progressive MS. I'm dealing with it. I try not to let it get me down
which is difficult now on my own (thought it would make it easier, ha ha!). I
was teaching art to people with disabilities and loved it until it became too
difficult for me.
Added 4 October 2009
Email: Oct10@mswebpals.org
Name: Mary
Gender: Female
Age: 68
Lives in: Lansing, Michigan, USA
Years with MS: 9
I have relapsing remitting MS. I thank God for my family and the love of my God
every day. I have a lot of pain in my legs and back. I can still walk short
distances and do my own house work. I don't mind it like I used to. I watch
game shows on TV and play my DS. God bless all of you that have this challange.
I have so much to be thankful for.
Added 4 October 2009
Email: Oct9@mswebpals.org
Name: Laura
Gender: Female
Age: 27
Lives in: Kent, UK
Years with MS: Don't know
I'm going through lots of tests at the moment. I have a lot of fatigue and
muscle and joint pain, trigeminal neuralgia, electric shock sensations,
irritable bowels, major headaches and the latest symptom is pins and needles or
numbness in my toes and fingers. The MRI on brain and spine had a clear result,
and tests on my blood and urine were also clear. I am due an appointment for an
electric shock test and think I've got to have lumbar puncture.
Added 4 October 2009
Email: Oct8@mswebpals.org
Name: Binky
Gender: Female
Age: 55
Lives in: Chicago, USA
Years with MS: 25
Once an advertising art director diva, then novel writer, I still work at
trying to make a life. My very dear life partner, best friend and caregiver of
20 years died this spring. The independence I felt I'd lost because of MS is
now a force in my life. I wish I could reverse time; I spend my time wishing a
lot these days.
Added 4 October 2009
Email: Oct7@mswebpals.org
Name: Lynda
Gender: Female
Age: 57
Lives in: Charente, France
Years with MS: 18
I moved to France with my husband seven years ago. He is my carer and
confidant. My neuroogist here is very good very sympathetic and makes me laugh
a lot. I have chronic MS and find getting around quite difficult - having to
rely on people is difficult for me. I have two little dogs, a cat and three
parrots. I love the garden and grow many fruits. There is noone in my area with
MS so I have noone to talk to. A friend who understands MS would be nice.
Added 4 October 2009
Email: Oct6@mswebpals.org
Name: JamiLyn
Gender: Female
Age: 28
Lives in: Washington, USA
Years with MS: 3
I will be soon starting therapy after having another exacerbation. I, like most
people, was'nt very familiar with MS until I heard it from my neurologist. I'm
looking to meet others who are both newly diagnosed and already on treatment to
discuss what's going on in our lives as a support system. I think it's
important to talk to others who are going through the same thing, and since I
don't know anyone in person, this is a great idea.
Added 4 October 2009
Email: Oct5@mswebpals.org
Name: Angel
Gender: Female
Age: 35
Lives in: UK
Years with MS: 1
I was diagnosed last year and am in early stages. Please feel free to contact
me. I'd love to hear from you.
Added 4 October 2009
Email: Oct4@mswebpals.org
Name: Carolyn
Gender: Female
Age: 46
Lives in: Ontario, Canada
Years with MS: 4 months, but probably had it for a year
My life changed May 2009 as I starting having paroxysmal symptoms on the whole
left side of my body. My balance and walking are off and I have pins and
needles in both hands and feet. I still don't have an official diagnosis. I've
had 2 MRIs and am going for a third on my brain and spine and have to have a
spinal tap. I used to be able to bike fast, walk briskly and rollerblade. I can
still walk but much slower. I have difficulty playing piano and typing at work.
I just started meds for paroxsymal symptoms. I work for a lawyer and am
treasurer at church. I'm married with one daughter who is at university.
Added 4 October 2009
Email: Oct3@mswebpals.org
Name: Sunshine
Gender: Female
Age: 43
Lives in: Toronto, Ontario, Canada
Years with MS: 15+
I have relapsing remitting MS. Major, major problems with fatigue, cognitive
deficiency, depression (at times), horrible pain in my eyes and back. Many
other symptoms crop up from time to time, brought on by stress/fatigue/summer
heat and humidity (thank God for A/C). I love writing, performing (when
physically able to) and watching comedy, which helps keep the depression at
bay. Trying so very hard to keep positive, hopeful and fighting. Praying a lot!
Keep well, my fellow MSers.
Added 4 October 2009
Email: Oct2@mswebpals.org
Name: Tom
Gender: Male
Age: 45
Lives in: Cleveland, Ohio, USA
Years with MS: 1
I was diagnosed in 2008 but have had symptoms going back a few years. I lost
the vision in one eye and that started the MRI, lumbar puncture and here I am.
I'm an Executive Chef and have been in foodnservice for 30 years. Besides the
fatigue and some memory problems, recently I've been having trouble holding my
knives and other culinary hand tools. I enjoy doing vegetable and fruit
carvings and I don't want to find out I can't do some of the things which I
have a passion for. I had to tell my employer about my diagnosis and I have
noticed I'm now being treated like a liability instead of a strong manager and
co-worker. I've been on Avonex since I was diagnosed, but can't handle being
down for two days a week. I'm starting on Copaxone and would rather have an
everyday injection than lose time with family and friends every week. I'd like
to hear from any fellow 'kitchen soldiers' for tips you may be able to pass on
to help with the long, hot days (and nights) in this industry.
Added 4 October 2009
Email: Oct1@mswebpals.org
Name: Gerard
Gender: Male
Age: 43
Lives in: Toronto, Canada
Years with MS: 12
I'm an elementary school teacher. I taught a self-contained autism/DD class for
7 years but will be teaching Grade 3 this coming year. I enjoyed working with
the autistic children but, given that I'm not able to run at the moment, I'm no
longer suited for working in such a high needs class. I think that my MS is
relapsing remitting. Problems come and problems go. I was first diagnosed when
I went blind in one eye for a couple of months. Other relapses have included
temporary paralysis, numbness, weakness, blurred vision and slow thinking. I
have lost the ability to run before and have been able to recover it after a
couple of years. I go to the gym 3-5 times a week, and I'm trying to move it up
to every day. I plan on being able to run again. I'm single and have found that
MS is a major impediment in trying to develop a relationship. My last
girlfriend dumped me because she couldn't deal with the idea of MS. I take
Tysabri and recommend it as it's the best drug that I have taken for it. I
first visited Jooly's Joint ten years ago and would like to make more friends!
Added 4 October 2009
Place your own MS
webpal advert!
New two months ago!
Email: Aug20@mswebpals.org
Name: Diana
Gender: Female
Age: 53
Lives in: Ontario, Canada
Years with MS: 15
I'd like to correspond with people with MS since I don't get out as much as I
used to. I've been taking Rebif injections for 15 years but am finding my legs
are starting to get weak. I'm interested to know if anyone has tried the gluten
free diet.
Added 3 August 2009
Email: Aug19@mswebpals.org
Name: Linda
Gender: Female
Age: 54
Lives in: UK
Years with MS: 20
Hi, I've had MS that long I don't know what's normal. My legs aren't much use
now but I don't do too badly. My family keep me going. My husband is my main
carer but my daughters give us a lot of support. I like to go shopping and I
love ornaments and niknaks so I always have nice things to look at. My husband
says I'm a pain in the butt sometimes but he loves me really.
Added 3 August 2009
Email: Aug18@mswebpals.org
Name: Tracey
Gender: Female
Age: 41
Lives in: Croydon, UK
Years with MS: 12
I'm a single parent whose best friend is her TV - it's always there for me
won't let me down, never argues and I control it. Since 2002 I've been
housebound after a really bad relapse (fell down my stairs). I now have
secondary progressive MS. I'd love to chat to people rather than the telly. My
daughter thinks I'm mad.
Added 3 August 2009
Email: Aug17@mswebpals.org
Name: Claire
Gender: Female
Age: 41
Lives in: Derby, UK
Years with MS: 23
Hi, I'm now a wheelchair user but it hasn't stopped me from doing my crafts and
slowing down has been a good experience. I'd like to make friends from all over
the world. If you wanna know more press the button.
Added 3 August 2009
Email: Aug16@mswebpals.org
Name: H
Gender: Male
Age: 57
Lives in: Guisborough, Cleveland, UK
Years with MS: 8
Hi out there! I was told I have MS in 2001, then I got a free upgrade to
chronic progressive in 2005. In just a short spell it has moved so fast. My
legs are no use. My left arm works 50% of the time. I spend 24/7 in a
powerchair. I'm a retired butcher, married for 30 years with one married
daughter.
Added 3 August 2009
Email: Aug15@mswebpals.org
Name: Lisa
Gender: Female
Age: 48
Lives in: North Carolina, USA
Years with MS: 10
I do not give in to MS. I walk every day, even when my leg drags. I may have to
use a walker sometimes but I keep pushing. I take classes online. Some days
it's difficult because I have problems with my sight. I do yoga. I have two
small dogs. I like them because they can care less as long as the food keeps
flowing and I keep walking them. I find meditation very good for settling down
at night. I try not to take an endless amount of prescripton pills. I find the
more you take the more your body needs for the meds to take effect. I work
through the pain if possible. If God gives you another day that is half the
blessing - the rest is up to you.
Added 3 August 2009
Email: Aug14@mswebpals.org
Name: Viera
Gender: Female
Age: 50
Lives in: Germany
Years with MS: 11
I have tried all the treatments (Avonex, Copaxone, Mitoxantron) but without any
positive effect. I still walk with a cane but have a lot of pain. I have three
children, but my husband left me very soon after I was diagnosed. It is hard
sometimes. I am very sad that there is no cure still for us. I would enjoy
contact with other people with MS to share the problems or just to chat with. I
like films, literature, crafts, paintings and arts. I was a translator. I still
have a dream of a happy healthier life with some lovely partner and friend.
Added 3 August 2009
Email: Aug13@mswebpals.org
Name: Mike
Age: 43
Lives in: Uttoxeter, England, UK
Years with MS: Diagnosed 1999
I was told I have MS in 1999 although I don't think it is MS, but I could be
wrong. My walking is very bad but the way my head feels has been the same for
many years, as far back as age seven or eight. I've led a very active life and
now it is as though it has come to a standstill, doing nothing and going
nowhere and no people to talk to.
Added 3 August 2009
Email: Aug12@mswebpals.org
Name: Gwen
Gender: Female
Age: 52
Lives in: East Sussex, UK
Years with MS: 2
I have relapsing remitting MS, and have just got over another nasty bout! I've
been told I need the 'assistance' of a wheelchair from time to time. I'm
normally active, so this is quite a shock to the system. I'm still be able to
drive my car. I have adult children and grandchildren. I'm single, and hope to
move into a bungalow soon. I'm one of seven children. My hobbies include
reading magazines and spending time with my children.
Added 3 August 2009
Email: Aug11@mswebpals.org
Name: Ducky
Gender: Female
Age: 43
Lives in: USA
Years with MS: 2
I had an exacerbation in January 2008 and was diagnosed with CIS/MS in April
2008. I started on Betaseron in June 2008 and decided to keep a positive
outlook and see this condition as a gift instead of a curse. I was very happy
it wasn't a worse diagnosis and I continue to try to learn more about MS and
what I can do to support and comfort others through our journey. I am blessed
with great family and friends, especially my husband, son and parents. I
actually have a better outlook on life since my diagnosis, it was an eye-opener
to what matters most in life and what I should spend my time and energy on.
Good luck to all those fighting MS. Keep your chin up and your giggle box
turned on because if you don't laugh, you might cry.
Added 3 August 2009
Email: Aug10@mswebpals.org
Name: Los
Gender: Male
Age: 46
Lives in: West London, UK
Years with MS: 4
I like films and the arts. I have a good sense of humour and am very easy
going. Right now I am being divorced by my partner of 17 years and would like
to make new friends to help me cope at this trying time.
Added 3 August 2009
Email: Aug9@mswebpals.org
Name: Don
Gender: Male
Age: 44
Lives in: Ohio, USA
Years with MS: 5
The only thing that bothers me is my left leg. Can anyone tell me what I can do
for leg pain at home?
Added 3 August 2009
Email: Aug8@mswebpals.org
Name: Dizzie
Gender: Female
Age: 59
Lives in: Australia
Years with MS: 6
I have primary progressive MS and walk with a limp. I have been married for 37
years and have two children, two grandchildren and two dogs. I used to ride
horses and now enjoy driving a horse and cart. My computer skills are not very
extensive but I'm learning.
Added 3 August 2009
Email: Aug7@mswebpals.org
Name: Powerpup
Gender: Female
Age: 45
Lives in: Illinois, USA
Years with MS: 10
I love running, reading, hiking, wall climbing, cycling, web surfing,
traveling, music, plays, movies, etc. My MS symptoms include vision problems,
fatigue, tingling and numbness.
Added 3 August 2009
Email: Aug6@mswebpals.org
Name: Noor
Gender: Female
Age: 50
Lives in: Jordan
Years with MS: 8
I was diagnosed with MS in 2002. As a result I felt very depressed because my
mother has also been diagnosed with MS and has been paralysed since 1990. I
hope to find a friend here.
Added 2 August 2009
Email: Aug5@mswebpals.org
Name: Judy
Gender: Female
Age: 59
Lives in: Houston, Texas, USA
Years with MS: 17
My first sympton was tremor in my left hand. MS has taken its toll. Now I can't
walk. I enjoy the internet, shopping and watching basketball, baseball and
football. Yes, I'm a crazy lady!
Added 2 August 2009
Email: Aug4@mswebpals.org
Name: Sylvia
Age: 53
Lives in: Maidstone, Kent, UK
Years with MS: 3
I have problems with my mouth and legs. I worked as a store manager up til last
June. I have four grown children, three grand children and six cats. I decorate
walking sticks as a hobby.
Added 2 August 2009
Email: Aug3@mswebpals.org
Name: Tom
Gender: Male
Age: 48
Lives in: Long Island, New York, USA
Years with MS: 3
I have trouble walking and have numbness in my left hand. I enjoy exercise and
music.
Added 2 August 2009
Email: Aug2@mswebpals.org
Name: Spick
Gender: Male
Age: 33
Lives in: Australia
Years with MS: 4
I was very active before MS, doing a range of sports. But now I'm on my
computer, chatting. If you like to chat just email me.
Added 2 August 2009
Email: Aug1@mswebpals.org
Name: Steve
Gender: Male
Age: 56
Lives in: London, UK
Years with MS: 30+
It started off with optic neuritis in 1975 but I didn’t know what the
problem was until 1979 when I kept falling over while on holiday with a wife
and two kids. It started as relapsing remitting for the first 15 years but has
developed into secondary progressive. I use a HBO chamber regularly and think
this is why I’m still getting around (albeit with a stick). After a couple
of years getting used to MS I got fed up with the advice I had received to
"take life easy" and started up my own company. I also began a
martial art. After a time, I was so busy at work I stopped helping myself and
stopped going for oxygen treatment. I began to suffer fatigue, so much so that
after eight hours sleep, I woke up thinking I could do with another seven! I
restarted the HBO and I don't get the fatigue problem now. I've done a PADDY
course in scuba diving and have been round some of the red sea. I've been on a
tall ship around the Grenadines and have done route 66 in the States. Another
year I did 7000 miles in three weeks around 10 or more states in the USA with
my family. This all goes to show that life doesn’t need to end when you
get diagnosed with MS.
Added 2 August 2009
Place your own MS
webpal advert!
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