| Email:
MSPride7@mswebpals.org
 
Name: Lisa
Gender: Female
Age: 41
Lives in: Oregon, USA
Years with MS: 2
Life has definitely been more difficult since I was diagnosed in 2008. The
worst is when people say you look fine. Maybe I am fine on the outside but they
don't see what I go through behind closed doors: medication side effects,
injections, pounding headaches, loss of vision and equilibrium. I recently lost
my job because I was constantly tired and could no longer remember all the fine
details of that position. The good thing is that I appreciate more the people
that I do have in my life. I still feel very much alone though and want to talk
with people who are not only gay but have MS.
Added 28 October 2009
Email: MSPride6@mswebpals.org
Name: David
Age: 50
Lives in: South Central Illinois, USA
Years with MS: Diagnosed July 2009
I was diagnosed by a neurologist but misdiagnosed a year prior by a doctor who
said I'd had a stroke. So I don’t know how long MS has been part of my
life. In 2007, I had serve dental pain and with the removal of some teeth the
pain went away until February 2009. I'm the first in my family to have MS. I'm
uninsured so searched for economic alternatives. One route led me to a two-year
clinical study on MS. I will be entering the study days before my 51st
birthday. So anyone have some helpful hints on how to survive with relapsing
remitting MS? Oh yes, I'm a single gay male.
Added 27 October 2009
Email: MSPride5@mswebpals.org
Name: Chuck
Age: 50
Lives in: Boca Raton, Florida, USA
Years with MS: 15 looking back, diagnosed 2 years ago
I just left work after a 28-year career as a financial professional. I either
have secondary progressive or relapsing remitting MS. Fatigue, spasticity,
constant pain, tremor and cognative issues are my primary problems. Since
leaving work I'm so bored. I'm trying to create a new definition of self. I
sure would like to meet other GLBT people to share with. There are times I use
a cane and while I don't own one there are times for long days or distance I
have used a wheelchair - this scares me most.
Added 27 October 2009
Email: MSPride4@mswebpals.org
Name: Tyler
Age: 32
Lives in: Denver, Colorado, USA
Years with MS: 9
I was diagnosed in 2000. I've been doing pretty good. I'm on Betaseron and have
side effects. Being gay and having MS has been the biggest challenge for me. I
just want to get out there and see if anyone is going through the same things.
Added 27 October 2009
Email: MSPride3@mswebpals.org
Name: Liz
Age: 44
Lives in: Rock Hill, South Carolina, USA
Years with MS: N/A
My son 21-year-old son was just diagnosed with MS. They have given him three
days of steroids. He is doing his undergraduate work and is attending summer
classes. We have to decide what treatment to start. I'd like to talk to other
lesbian mothers with children who have MS. Or anyone with MS. One question I
already have is about stem cell transplants.
Added 3 August 2009
Email: MSPride2@mswebpals.org
Name: Wyatt
Age: 45
Lives in: Gulfport, Mississippi, USA
MS Years with MS: 16
After all these years of hiding it I can't pretend anymore. Oddly, I haven't
had this much difficulty being gay, even though I grew up in South Mississippi!
Now I can't hide my limp and sometimes I stumble and fall. I've never felt so
alone. I can't seem to find the courage to leave the house, and that just isn't
me! I like being out and about. I'd like to talk with other gay people.
Added 16 August 2009
Email: MSPride1@mswebpals.org
Name: Klaus
Gender: Male
Age: 49
Lives in: Blackwood, New Jersey, USA
Years with MS: 5
I had a stroke five years ago. After all the horrible tests I was diagnosed
with MS. It was terrible for my partner. The pain is getting worse and
Oxycontin doesn't help anymore! Please, someone take the pain away at least for
one day! I miss sex a lot!
Added 16 August 2009
Email: MSPride99@mswebpals.org
Name: Anthony
Age: 47
Lives in: North Vancouver, British Colombia, Canada
Years with MS: 1
Hi, I'd like to meet others in my area that have MS. I think it would be great
to get together, have a coffee and share tips.
Added 2 August 2008
Email: MSPride98@mswebpals.org
Name: Rick
Age: 52
Lives in: California, USA
Years with MS: 20+, finally diagnosed in 2002
I'm a single guy with MS, joining three others in the family already diagnosed
(sister, and near cousin each side of the family). I'm still working, with mild
to moderate impairment. I've watched one relative and one friend slide downhill
on injectables so I dropped Avonex (high cost aside, no benefit/miserable side
effects) for LDN in 2006. It's dirt cheap with no drawbacks that I can see, and
I've experienced some mild improvement. I know some of what you're probably
facing. I'm a good listener, hit me back.
Added 2 August 2008
Email: MSPride97@mswebpals.org
Name: Oakley
Gender: Male
Age: 33
Lives in: Maine, USA
Years with MS: Long time but diagnosed 2008
My symptoms include pain everywhere. My legs are bad, they feel like they keep
getting run over. My ribs and chest hurt bad like 100 knives stuck in me
getting twisted. My face and neck - oh my god kinda pain. I'm looking for new
friends. I don't want to be alone as I'm a nice guy in need of nice friends.
Added 2 November 2008
Email: MSPride96@mswebpals.org
Name: Stephanie
Age: 37
Lives in: Austin,Texas, USA
Years with MS: 11
Hey, I'm looking to meet some friends in my area or webpals. I have pretty good
movement. I walk with a limp - I tell folks I was attacked by a shark. I've
been sick about 11 years and went from having one bad leg to two bad legs. But
pump me up with steroids and all is good. I need some friends that have some
understanding of what life is for us. I'm single, but would like to meet
someone that is independent (like me). Anyone new to MS, please feel free to
write and I can tell you what know. If anyone has done acupuncture let me know
the results.
Added 30 October 2008
Email: MSPride95@mswebpals.org
Name: Anne
Age: 54
Lives in: Grants Pass, Oregon, USA
Years with MS: 34
I'm a writer, primarily a poet. My officially official domestic partner is
wonderfully supportive and a terrific carpenter, so ramps go in where ramps are
needed and they are done well. I'm told my MS is secondary progressive. If so,
I've been on a lovely plateau for a while. I fatigue easily. MS is a tricksy
trickster. My mom had MS and one of my (male) cousins does. I avoid long walks,
high stress, and heat. I like rowing on an ergonometer because it's full body
exercise at home and the machine's wheel blows cool air back over me as I
row.
Added 30 October 2008
Email: MSPride94@mswebpals.org
Name: Canman
Age: 52
Lives in: Canada
Years with MS: 12
I've been living and fighting MS for too many years. I try to keep fit. I enjoy
my life and always try to share time with my friends.
Added 30 October 2008
Email: MSPride93@mswebpals.org
Name: Jean
Age: 56
Lives in: Vail, Arizona, USA
Years with MS: 20
Up until two years ago I was travelling the world with my partner of five years
(yey, I climbed and walked on the Great Wall of China!). Now I'm an 'internet
traveller'. I know that my walking will improve, allowing us yet another
adventure or two! I'm a retired (because of MS) speech pathologist. My partner
is a nurse. We have a wonderful life together, enjoying it moment by
moment.
Added 30 October 2008
Email: MSPride92@mswebpals.org
Name: Abi
Age: 39
Lives in: West Midlands, UK
Years with MS: 5
Hi, I'm single and nearly 40. I enjoy reading, art and going to the theatre. I
love taking my little dog for a walk although the MS sometimes limits this. I
have relapsing remitting MS, slowly progressing to secondary progressive MS. I
get tired quite a lot and walk with the aid of a stick (or two) but have kept
my sense of humour. I'd love to hear from any gal out there with similar
interests.
Added 7 May 2008
Email: MSPride91@mswebpals.org
Name: Gail
Age: 50
Lives in: New Hampshire, USA
Years with MS: 5
Hi, I was diagnosed in 2003. I had to retire from the postal service. When I
was first diagnosed it was a really confusing time for me. Body parts didn't
want to work. I've been in remission for four years. I've been with my partner
going on 24 years. I'd like to correspond with anyone who has MS, is new to it,
has any questions, etc. I'm a huge fan of lesbian fiction/ romance. Radclyffe
is absolutely my favorite author. I'd love to discuss her work or that of any
of the other authors from Bold Strokes Books. My partner and I breed German
Shepherds.
Added 4 May 2008
Email: MSPride90@mswebpals.org
Name: Pete
Age: 44
Lives in: Vancouver, British Colombia, Canada
Years with MS: 1
I was diagnosed with relapsing remitting MS a year ago. It's taken me a year to
deal with the initial shock and denial. My older sister was diagnosed four
years ago, so by the time I was referred to a neurologist, I pretty well knew
what was wrong. She and I have totally different symptoms. I have had no really
bad relapses. My legs and feet are numb and I have bladder issues. I have my
own business, but wonder how long I can keep it and what the future holds (one
day at a time I guess). My partner of 14 years is very supportive, but I feel I
need to communicate with other gay men and women who understand the issues and
feelings that someone in our condition has.
Added 4 May 2008
Email: MSPride89@mswebpals.org
Name: BearJames
Age: 49
Lives in: Suffolk, UK
Years with MS: 19
Hi all! I'm a single gay guy. Fortunately, I'm still reasonably active, though
it takes a while to get going in the morning! May be my age, who knows! I have
a very postive outlook on health issues, and often push myself too hard. But as
they say, use it or lose it! I keep myself amused by doing gardening, which I
find is a great stress reliever. I love cooking and socialising with friends.
We have barbeques and parties in the summer. I'm a dab hand at DIY and can fix
anything mechanical. I love classic cars and music of most types, but not jazz!
I have two rescue cats who are great companions. I'm happy to chat with
guys/gals on here, whether straight or gay. I'm easy to get along with and
don't take offence easily. So get writing!
Added 4 May 2008
Email: MSPride88@mswebpals.org
Name: Jody
Age: 42
Lives in: Lawrence, Massachusetts, USA
Years with MS: 8
Hi, I have had highs and lows with my MS, but right now it's in remission. I
did five years if chemotherapy to get here. It's all good. I don't work and
walk with a cane but can still drive. I've been travelling as much as money
will allow. I feel I have to use it in case I ever lose it! I have recently
travelled to England to see family, California to see friends and will soon go
to Florida before it gets too hot. It's hard to find lesbians with MS. I know
that you are out there. I have a great attitude. I feel that's half the battle!
I get steroids every six weeks. I love art and try to see and do as much of it
as my body will allow. I have a cat and a goldfish. In my past life I went to a
school for Graphic Design. I worked for Macy's as a Manager in the handbags
department. Yes a bag-free lesbian! Well, that's my story! Let's talk.
Added 4 April 2008
Email: MSPride87@mswebpals.org
Name: Karen
Age: 36
Lives in: UK
Years with MS: Currently in limbo
Hi, I'm in a wonderful relationship with my partner of seven years. I'm having
a lot of tests at the moment (trying to get a diagnosis). I'd love to hear from
others with the same problems. I've had a lot of weakness in my arms and legs
and other problems. It would be nice to be in touch with others going through
the same thing.
Added 11 February 2008
Email: MSPride86@mswebpals.org
Name: Laura
Age: 47
Lives in: Illinois, USA
Years with MS: 12
I used to be a nurse but had to quit because of MS. Now I'm a dog walker which
I love as much as I loved nursing. It took many years to diagnose me but being
a nurse and having three family members with MS I already knew I had it. I love
to keep myself busy when I'm not too fatigued. I love animals, especially dogs.
Have a dog who keeps me very busy. I like to read, do some traveling when I
can, hike through the woods and anything outdoors in the summer. I'm looking
for a webpal to chat with about anything.
Added 11 February 2008
Email: MSPride85@mswebpals.org
Name: Cathy
Age: 53
Lives in: Santa Barbara, California, USA
Years with MS: 9
I'm originally from new York, but was living in Florida when I was diagnosed in
'98 with relapsing remitting MS. I was struggling with the heat so I moved to
the west coast. I was overjoyed to find a more moderate climate here in Santa
Barbara. Before my diagnosis I had a 20 year career in the automotive field. I
enjoy sports, photography, books (on tape), cooking and pottery. I wear a brace
on my left leg because of foot drop and knee hyper-extension. I use a scooter
when necessary, as long as my vertigo doesn't present itself. I have a positive
attitude and great sense of humor. I'm looking forward to hearing from others
who 'get it' without explanation.
Added 11 February 2008
Email: MSpride84@mswebpals.org
Name: Shannon
Age: 36
Lives in: Orlando, Florida, USA
Years with MS: 1
I'm a lesbian with a wonderful partner of 13 years. We had been living apart
for four years while she completed her PhD in Florida and I stayed back to work
in Denver. I finally moved to Orlando, Florida 15 months ago, and was diagnosed
with MS 11 months ago. I had been sick a lot the past few years with sinus
infections and pneumonia. I just thought it was bad allergies. I had a bad cold
at Christmas break last year, and then started going numb and losing feeling
throughout my body. With in a month they had a diagnosis. I grew up with my
mother having MS, so it's always been a part of my life. It was extremely
emotional and hard to see my mom go through her pain and struggles. I was
stunned to have it as well! I could take care of my mother, but now I have to
be strong to take care of myself, which seems to be very hard! I’m doing
it, but it's hard to stay positive sometimes. I'd like to connect with gay men
and lesbians that have MS that just need someone to talk to, support and to be
able to talk to about my life without worry! I know other people with MS, but
no-one gay. Looking forward to meeting you!
Added 5 January 2008
Email: MSpride83@mswebpals.org
Name: Karen
Age: 58
Lives in: North Central West Virginia, USA
Years with MS: 14
I don't have a lot of symptoms and I'm not on any meds for MS. I work 40 hours
per week. I can retire in three years. I have a dog and a cat. Both are spoiled
rotten. I love movies, football and tennis. I play guitar and sing. I love
music. I'd like to hear from others.
Added 5 January 2008
Email: MSpride82@mswebpals.org
Name: Mary
Gender: Female
Age: 34
Lives in: Phoenix, Arizona, USA
Years with MS: 1
I'm a gay female looking for friends. I love to read and watch movies.
Added 5 January 2008
 Are you in the UK?
GLAMS
is a self-help group of lesbian, gay men, bisexual and transgender people
affected by MS in the UK.
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