Jooly's Joint: people with MS supporting each other

[Make Friends] [Be Inspired] [News] [Contact Jooly]




Smiling sun Jooly's Joint Email Discussion Groups


  • Do you enjoy receiving lots of email every day?
  • Would you like to share your experience of life with MS with others around the world?
  • Would you like to hear how other people with MS deal with symptoms, running a family, work, travel and many other issues?

Jooly's Joint offers 4 different email discussion groups that you are most welcome to join!

Smiling sun About email discussion groups

Email discussion groups are a chance to exchange emails with many people with MS at once.

When you join on of our groups you will immediately start to receive all the messages that other members of the group send around the group. This can be very overwhelming at first! You may receive as many as 20 messages per day.

You don't need to reply to the messages, but if you would like to join in the discussion then you are very welcome. Just reply to the message, making sure that the group email address appears in the 'to' line of your message.

If you join a group but later decide that you would like to leave, just contact Jooly.

Smiling sun Guidelines for group members

Please remember that our discussion groups are for MS support, and all messages should be about MS support. Jooly moderates all of the groups, and may delete messages that stray too far from the general area of MS support.

Please respect our guidelines and help us keep the groups useful, friendly and supportive.

These are our general group guidelines:

  • Please don't use our groups to solicit sale of any herbal therapy or other treatment regime. Anyone found using Jooly's Joint for this purpose will be removed from the groups immediately.
    If unsure, contact Jooly.


  • Please do not send junk email, chain letters or computer virus warnings to our lists. If you are concerned about a computer virus warning that you have received, contact Jooly. Jooly will check out the warning and circulate it to the list if appropriate.

  • A sense of humour is very welcome! But please don't send jokes to the groups. If unsure, contact Jooly.

  • Please do not discuss of religion (unless the group is MS Christians) or party politics. Trust me, it only leads to arguments!
    If unsure, contact Jooly.


  • Please do not post that include racist, sexist or homophobic comments or jokes, offensive language (swearing), threatening behaviour or behaviour likely to cause distress to other members. Please treat other group members with kindness and respect.

  • If the content of your message truly only applies to one person, then please email that person privately. Please try to avoid sending one or two word responses (such as 'I agree') to the groups. Some of the groups generate up to 100 messages per week. Keeping messages to the point helps everyone, especially those members who have to pay to download email, have slow internet connections or any other difficulty dealing with large numbers of emails.

If you are unsure if your message is appropriate, contact Jooly.

If you are not willing to follow these guidelines, you may be asked to leave the group. The guidelines have been agreed by group members and exist to keep our groups useful and welcoming. While Jooly doesn't strictly moderate all the groups all the time, she does keep an eye on them and will contact people who don't stick to the guidelines. In our 11 year history, less than 5 people have been asked to leave, which is a record we can all be very proud of!

Please consider the guidelines before joining any group.

Finally, never try medicines or treatments you read about on the internet without speaking to your doctor or MS Society first. Any statements made result from the experience of the person writing the message and are should not be taken as expert or professional advice.

IMPORTANT: You may receive a LOT of email every day if you join one of our lists!

OK, now you know the rules, please join us and enjoy!


Smiling sun Our groups


Smiling sun JJ World

At JJ World people with MS from all over the world will be able to exchange supportive messages about life with our condition. JJ World has 279 members.

To join in, just enter your email address below, then click the 'Join now' button:

Once you have joined JJ World you will receive a message of welcome from JJUK Moderator Julie. You will be able to send messages to other members by emailing jjworld@yahoogroups.com.

Read about some of JJ World's members!


Smiling sun JJUK

Jooly's Joint is a worldwide service, but has its origins in the UK. In this group, UK MSers share discussion about living with MS in the UK. This group has 355 members. The group is warm and supportive and you'll be made to feel most welcome.

To join in, just enter your email address below, then click the 'Join now' button:

Once you have joined JJUK you will receive a message of welcome from JJUK Moderator Julie and JJUK Membership Co-ordinator Divvy. You will be able to send messages to other members by emailing JJUK@yahoogroups.com.

Read about some of JJUK's members!


Smiling sun MS Christians

In this group Christians with MS can exchange supportive messages and post prayer requests. This group has 112 members. To join in, just enter your email address below, then click the 'Join now' button:

Once you have joined MS Christians you can send messages to other members by emailing mschristians@yahoogroups.com.


Smiling sun Nurses with MS

Many members of the JJ community work in the medical profession. In this group, nurses and doctors who have been diagnosed with MS exchange supportive messages. This group has 150 members. To join in, just enter your email address below, then click the 'Join now' button:

Once you have joined Nurses with MS you can send messages to other members by emailing nurseswithms@yahoogroups.com.

 


[Make Friends] [Be Inspired] [News] [Contact Jooly]