Jooly's Joint: people with MS supporting each other

[MSers] [Family] [Everyone] [Fun] [Contact JJ] [About Jooly] [Map]

How you can help us

10 ways you can help our campaign for beta interferon on the NHS

Sign the petition

  1. Sign our online petition
  2. Write to Paul Burstow MP: Paul is working closely with the MS Research Trust to raise a number of issues in the House of Commons regarding NICE. We need to show him the level of interest and frustration people with MS feel about the further delays in getting a decision on beta interferon and the disparity of access in different parts of the country. Print out this letter to Paul and send it to him c/o the MS Research Trust.
  3. Write to the Dept of Health: Write to the Minister responsible for MS services, outlining the reasons why you believe national standards of care are important for people with MS. You should write to John Hutton MP, Minister of State, Dept of Health, Richmond House, 79 Whitehall, London SW1A 2NS, UK.
  4. Write to NICE: If you have been assessed as being eligible for beta interferon but have been refused funding by your health authority, you can write directly to NICE outlining your situation. Letters should be sent to: Rod Taylor, Head of Appraisals, NICE, 90 Long Acre, London WC2E 9RZ.
  5. Stimulate public debate: Go to CitizenSpace on the UK Online Citizens Portal, and join the public debate. Don't be put off by other members of the public who may try to silence us - we have every right to use that forum to express our views.
  6. Write to your MP: Write to your MP at House of Commons, London SW2A 0AA. Ask him/her to speak to the Health Minister or your behalf. If you don't know who your MP is, try the House of Commons MP Locata. Alternatively, Fax Your MP directly from the Web.
  7. Contact the media: Contact your local press and radio stations. Contact the National press, radio and TV stations. Make the most of any opportunity to raise awareness and stimulate debate on the NICE decision. The MS Society have produced a sample letter which you may adapt and use.
  8. Write to the Mirror: National newspaper The Mirror is taking great interest in our campaign and would like to hear from you. Write to: The Mirror, One Canada Square, London E14 5AP.
  9. Question Time: Apply to take part in the BBC TV Question Time programme when it comes to your area.
  10. Keep talking, and take every opportunity to raise awareness of the need for access to beta interferon on the NHS.

[MSers] [Family] [Everyone] [Fun] [Contact JJ] [About Jooly] [Map]